Hi there @Hayle1807,
Welcome to the Blood Cancer UK Forum, glad you found your way here - though I can hear how draining and disorienting the last few months have been for you. I can see that one of our fantastic Forum Support Volunteers @GenesisDevice has already responded, so to add to what he has said:
What you’ve described (platelets jumping around, possible iron deficiency, an inconclusive JAK2 result, and now a bone marrow biopsy on the horizon) would leave anyone feeling stuck in limbo. It’s a lot to carry on top of other symptoms and the uncertainty that comes with anxiety and perimenopause.
You’re definitely not alone in this, and we regularly hear from people whose investigations for raised platelets aren’t straightforward, especially when the first round of tests doesn’t give clear answers. A few members have shared similar experiences in threads like these (and you can search for others, or look at the ‘Related’ suggestions list that should appear at the bottom of this thread):
• High platelets, no answers
• Raising platelets - should I be worried?
For many people, the process is very much ‘one step at a time’, ruling things out, retesting, repeating bloods, and waiting for patterns to become clear. It’s also completely understandable to feel wary about ending up with a label that most GPs haven’t come across often. Your reaction makes absolute sense in the context of everything.
While you’re waiting for the biopsy, please know you can use this space to talk through the uncertainty or ask anything that’s on your mind, whether that’s symptoms, the process, or just how you’re feeling day-to-day. There are people here who know what those in-between stages are like and will be happy to share what helped them navigate it.
As Mike mentioned already, you’re very welcome to call our Support Line on 0808 2080 888 or you can also email support@bloodcancer.org.uk if you’d ever like to talk things through with one of our brilliant Blood Cancer UK nurses. They can explain what these tests usually look for, what different results might mean, and anything else on your mind while you’re going through this.
Take things at your pace, and keep posting if it helps you - this is a wonderfully supportive community and we’re here and listening.
Take care,
Ceri - Blood Cancer UK Support Services Team