Feeling a little lonely at the minute waiting for a JAK2 test results - anyone have any experience of how long the test results take to come back?
I have thrombocytosis with a history of pulmonary embolism. I am on long term blood thinners as a result.
I have all of the symptoms of Polycythemia Vera, including the high platelets and hematocrit.
Is there anyone with a similar history? Or Polycythaemia vera (PV) diagnosis? I’m a little worried about the potential treatment since I’m at high risk of blood clots.
Sending lots of love to everyone living with blood cancer <3
Waiting for test results can be a lonely and worrying time and it is normal to feel this way. We are all here to help and support you and I am sure others will share their own experiences with you. If it would be helpful to talk things through, please do not hesitant to contact the support nurses on 0808 2080 888.
JAK2 results normally take between 3-4 weeks to come back. This however can vary depending on where you live as this test usually has to be sent to the bigger hospitals to be processed and the results interpreted.
Hello there @victoriaelizabethalice, welcome to the forum. I’m really sorry to read of your test result wait and worries, this has got to be one of the more difficult times when testing for stuff like Polycythaemia vera (PV).
I remember it well. Try to bide your time and not google too much as there’s a lot of generalised nonsense online. Stick to official websites like this one, I’d say.
Perhaps I could try to reassure you that you’re not alone should you have the JAK2 gene mutation or Polycythaemia vera (PV) as I tested positive for them both and am still here 2 years later.
Somehow I’m healthier than before diagnosis thanks to keeping active and well-nourished and having regular checkups and monthly blood tests. I feel very supported by my haematologist and other specialists I see.
If you look around the forum you’ll find many other members who live well with Polycythaemia vera (PV) and other related Myeloproliferative neoplasms (MPN). I would say for now dig into some distracting activities while you await those results. I watched so many films while I was in between tests and results, and hiked a lot.
Please do come back and let us know how you get on @victoriaelizabethalice, and if you have any questions or worries before your results don’t hesitate to ask anything that comes to mind.