I have just been diagnosed with Multiple Myeloma. I have had back pain since March 2025 but put it down to muscle strain. The pain initially got better but in June I deteriorated rapidly and went to my GP to start having tests. I soon became unable to support my own weight and had to use walking sticks. I am now essentially housebound. I have been on painkillers and start chemo on 2 September. I’m due 4 months of chemo then stem cell transplantation. It’s been quite a lot to get my head round.
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Hi @Judo_Essex
I am so sorry to hear of your diagnosis and about you feeling so unwell. I have a different diagnosis but can relate to those feelings of trying to get your head around things .You go through every emotion you can possibly feel I think , I know I did !
I am sorry I can’t give you any wise words as I know very little about Multiple Myloma but the guys on here are always really amazing , I am sure someone who knows more will comment .
Starting Chemo must be really scary, am due to start treatment soon so can really relate to that feeling of the unknown and wondering how things will go . What I can say is please be very kind to yourself and chat with your team about any questions you have , as the lovely @Erica always says “ be pleasantly assertive ! “
Take care , let us know how you are getting on
Dottie
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Hi Dottie. Thank you for your kind words and thoughts. Yes, I’m trying to stay positive. It’s quite a challenge when there is so much uncertainty and you’re not sure exactly what is ahead of you. I’m trying not to think too far ahead and try to focus on what I need to do today/tomorrow. I’ve always been someone who plans way in advance and likes to have everything under control so I’m having to reprogramme my brain! Hope your journey is going well. Julie
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I am a planner like you so understand the difficulties of the not being able to control stuff
I like your take it a day at a time plan, that’s what’s working for me.
Good luck with things , I hope it all goes well
Take care x
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Hi @DottieB I was diagnosed with Multiple Myeloma in 2018 and it came out of the blue. Like you I had severe back back but people just told me I was being lazy and just needed to do exercise. They only took me seriously when my vertebra fractured. I had two weeks of radiotherapy and then six months of VTD chemo by injection followed by a stem cell transplant. The chemo was fairly easy going and I was soon back on my feet. The Stem cell transplant was a bit heavier but going but once I regained my strength I was able to get on with my life. My advice to you. Keep a good support network around you and take every opportunity to do fun things and things you enjoy to offset the bad stuff. Let us know how you get on, you have always got us as a support network. Hoep it goes well.
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Hi @Franko
Thank you for your kind reply , it’s so nice of you to write . I have a different diagnosis so am including the original poster @Judo_Essex so she knows of your response, it’s confusing sometimes when lots of us post
I hope you are okay yourself, I really appreciate your kind comments,
Take care Dottie x
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