My husband’s myeloma has relapsed again and he has now been offered Talvey (talquetamab). Just wondering if anyone has had/is on this treatment and your experience of it & side effects
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Hi @Lot
I’m sorry to hear that your husband’s myeloma has relapsed.
My diagnosis was with a different blood cancer called Myelofibrosis.
As you will know as someone who previously posted a few years ago, there’s several people who are dealing with Myeloma who hopefully will share experiences if they can.
It may also be worth speaking with the @BloodCancerUK-SupportTeam and the @BloodCancerUK_Nurses as they I’m sure will be able to offer insights.
You can contact them using the information below. I’ve also tagged them so they may respond to this message
Call us for free on 0808 2080 888 (Option 1) to speak to one of our Support Service Nurses in confidence.
Our phone lines are open:
- Monday, Wednesday, Thursday, Friday: 10am – 4pm
- Tuesday: 10am – 7pm
- Saturday: 10am – 1pm
- Sunday and bank holidays: Closed
Alternatively, call us anytime and leave a message and we’ll get back to you within one working day.
Take care and best wishes to you and your husband
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Hi @Lot,
I’m sorry to hear that your husband’s myeloma has relapsed. How are you both doing?
@DuncanB’s already flagged this for our nurses, who might be able to share some clinical perspective on Talvey soon. I also took the liberty of searching the forum for any other mention of it/talquetamab, but couldn’t find anything I’m afraid. However, Myeloma UK have a Talquetamab (Talvey) Treatment Guide in their library (it’s the first one listed) if that’s helpful.
Hopefully some others in the community who’ve had experience will see this and share their advice too. And if it would help to talk things through, our Support Services team is happy to do that, of course. You can reach them for freeon the number DuncanB listed above, or email them at support@bloodcancer.org.uk.
Thinking of you both,
Ceri - Blood Cancer UK Support Services
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