Hello,
Thank you for sharing, I am sorry to hear that you’ve not had a positive experience with your CNS. As someone with blood cancer you have a right to be given a key worker. Someone in your medical team should act as your main point of contact for everything to do with your medical care and wellbeing. If you can’t get through to your CNS there may be other options to explore. Depending on where you’re based, do you have a local Maggies/ Macmillan cancer information centre you could contact? Or perhaps there’s a general nurse or chemotherapy nurse that managed your care that could help? Could you mention it to your consultant at your next follow up? Our support team are to talk through options to get you the information and support you require.
I understand everyone has different experiences of their CNS’s but I also wanted to shine a light on positive experiences people have: Nurses appreciation post - tell us about your nurses
As always our support is here for you all, should you wish to talk about this thread further. You can call us free on 0808 2080 888 to speak to a member of our trained blood cancer support team in confidence. Or email support@bloodcancer.org.uk.
Khadijha