Hello @Wendy12345, thank you so much for sharing your story here and for being so generous in wanting to help others too. That’s so lovely to hear.
It’s good to hear you’ve got such a strong team behind you at the Royal Marsden Sutton, and that your husband has been such a steady presence throughout. It sounds like you’ve been through a lot! But how incredible about that allograft bone marrow transplant?!
You mention your stomach issues and fatigue are getting worse at the moment. That’s always worth mentioning to your team at the Marsden if you haven’t already, just so they’re aware and can keep an eye on it. We do have some general information on managing fatigue that others on the Forum have found useful, if it’s helpful: Fatigue | Blood Cancer UK. There’s also a good thread where our nurses and other members have shared tips on coping with it, which might be worth a look: Ask the Nurses - Managing fatigue.
Our Support Services team is also there any time - 0808 2080 888 (option 1) or support@bloodcancer.org.uk.
Thank you again for offering to share your experience - it’s really this kind of openness that makes this community what it is, and it’s wonderful to have you be part of it.
Take care,
Ceri - Blood Cancer UK Support Services