@Erica thank you so much for your kind words about my blog !
Itās been difficult past 6 months after being diagnosed I didnāt know anything about CML or could find any help
So I decided to write my journey to help anyone diagnosed not just with cml but with cancer , as feelings are the same with the Dreaded C
So as long as I can help at least one person I feel proud !
So thank you x 
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Hi Leanne, you can feel proud and please write more blogs and posts here.
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Thank you so much for sharing your experience with us. I cannot imagine what you must be going through at the moment. I saw that you were wondering about the process of a bone marrow transplant. I thought I would forward this link to you regarding Having a stem cell transplant. This topic on the forum has its own thread and feel free to ask people who have already hjad the procedure done.
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Morning Rita @lkipper555. I hope you have some good news today. I spoke at a Wellbeing event at The Christie in Manchester a couple of weeks ago and was envious of the facilities they have there, not only to deal with the physical effects of treatment, but to help patients and families with the emotional problems caused. it may be worth asking what is available to you all.
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Morning Jenji I had Hodgkins Lymphoma which gave me an uncomfortable itchy rash and breathlessnes, that is not to say that I am making a diagnosis, but to say that one of my symptoms was a rash. I had many tests (echocardiogrm, CT, chest x-ray and chest biopsy) I had a bone marrow biopsy before my SCT and although it was uncomfortable for a few minutes, although I had a local anaesthetic, I would not say that it was the most painful of the procedures I had. I had a piece of calming music which i focused on, and also concentrated on my breathing, using techniques learned during childbirth (LOL) If you have any other questions after you see your consultant do come back to the forum. Donāt forget that Bloodwise have plenty of information online.
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Hi Ian @Ianrhunt. I am sorry to hear of your sonās diagnosis. It sounds as if he has the resilience needed to go forward with treatment and then planning a future at Manchester University. I spoke at the Christie a couple of weeks ago at a Wellbeing event and was envious of the support they had there for patients and carers. They certainly want to make sure that all that enter their doors get the best help medically, physically, emotionally and financially.
You and Andrea must be so proud of your boys, and I wish you all well in the coming months
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Hi @Lisa You are probably on your way to Germany now to meet with your donor and family. I know a few people whose donors are from Germany. I wonder if they have a different scheme to find donors? After my treatment I went to pieces and my GP actually said that I had a form of PTSD. Even 10 years on I still get very anxious before blood tests and seeing my consultant. Enjoy your time in Germany and āSeize the Dayā. A cancer diagnosis certainly makes you reassess what is important in your life
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Hi there, Just an update from yesterday at the Clinic. Daves Scan results were excellent and āAll Clearā so couldnāt ask for more. He does however still have to have a course of Radiotherapy at Christies, so we are just waiting for the call/letter. As we talk, we are not sure how long a course/schedule this will be Thanks again Rita
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Hi Rita @lkipper555 I am so pleased that Daveās scan results are clear. I hope the RT goes well and that you do not have to wait too long for the appointment to come through. Have you found any other topics that help on the forum? You may have a question that you would like help with, but if it isnāt there do start a thread, as if you have the question you will probably find others also might have had the same experience
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Hi I am Penny 65 and was diagnosed with Indolent Follicular NHL in 2013 which had transformed. Had R-CHOP but no maintenance as I didnāt cope well with the Rituximab. I have been in remission since until today!! I had some symptoms which needed a scan and apparently itās not looking good so now waiting to see the consultant about next steps. I would be interested to hear if anyone has been at a similar point and what options they were offered for the next phase of treatment. I think I am more shocked this time than I was at the original diagnosis so still a little stunned. Interestingly I took part in some recent market research about Bloodwise so was able to come to the site immediately I came home from the scan! Look forward to hearing everyoneās stories and contributing as I continue on my journey with this disease.
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Hello @Penny1,
Thank you so much for taking the time to join the online community and sharing your experience with us. I am sorry to hear that you are having some symptoms and that you need to speak to your consultant for the next steps. It sounds like your are feeling shocked by the whole ordeal. I hope the community can help in anyway we can. Feel free to start topics about your own experience and feel free to comment. Thank you for being here with us.
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Hi Penny, itās great that you have joined our community forum, we are all here to support each other, we might all have slightly different experiences, but I think we all share the same fears, thoughts and feelings. My thoughts would be to write a list of your questions and fears you want to ask the consultant, take notes and give yourself time to digest what they have to say before replying. You do not mention if you have someone you would like to take to the appointment with you, sometimes I do and sometimes I donāt. Take care and please do let us know how you get on when you see your consultant.
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Hi @Penny1. I am sorry to hear that you are having further problems. I had aggressive and relapsing HL, which is different to your case, but although my case is different to yours, I would say that my case looked hopeless at times, but 10 years post SCT I have defied all the medics and am still here. Never give up hope.
I am so pleased you have found the forum, and hope that you will keep us informed about how you are getting on. I hope that you will find something on here that helps you
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Hi Maggie, so sorry to hear that your sister passed away, you must really miss her. I really admire the way you have raised so much money doing something that I am sure takes up a lot of your time. Thank you for all of your hard work
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Hi, I have had lots of bone marrow biopsies and they are ok, the consultant will give you lidocaine (anaesthetic) before and are very caring when doing them. I had my first one alone so they asked a nurse to sit with me and she was lovely. If you are anxious let them know and I am sure they will look after you
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Thank you for your comforting reply hereā¦I have my consultant appointment on next Friday the 19th. After that I should know more about investigations and whether or not I need a bone marrow biopsy. Fingers crossed!
Look after yourself
Take care
Jenji
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Thank you so much for keeping us in the loop regarding your consultant appointment. We hope the best for you and please come back on here when you can.
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Its my pleasure, please donāt hesitate to ask anything / talk about anything here, we all want to help, take care and keep us updated
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Hi Jenji, yes, please do let us all know how you get on with your consultant appointment on the 19th and how is it awaiting the appointment for you?
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HI all,
Iāve been a member of the community for a while, but havenāt done much posting yet! I am Emma and Iāve recently finished treatment for Acute Lymphoblastic Leukaemia which I was diagnosed with in 2015 when I was 35 at the time.
I live up in the North East of England, treated at the wonderful Freeman hospital and Iām lucky that Iām in remission, I just have some issues with fatigue and tingly toes to contend with - I know I wonāt be alone on that one.
Iāll try to be more active in the future and would love to talk to you all soon 
xx
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