Hi, my names Jackie, i was diagnosed with Myelodysplastic syndrome (MDS) on fri 25th July, after my diagnosis, i felt relieved that there was actually something wrong, i have low grade Myelodysplastic syndrome (MDS), and feel quite positive that according to my strength each day, I am going to enjoy the things I can do, and not dwell on the things that I cant do.glad to be part of this group
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Hi Jackie, welcome to the group. I was diagnosed with Myelodysplastic syndrome (MDS)/Myeloproliferative neoplasms (MPN) overlap in Jan 2021. What a brilliant attitude you have. Are you having treatment yet? I have a weekly aranesp (EPO) injection . Just recently, my blood count got too low, so we upped the dose of the injection and things are looking up. I have found that the specialist nurses are very helpful in answering any queries that I have. I hope that things go well for you. Keep in touch . Very best wishes, Kate x.
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