Hi there@Gill,glad to hear that your biopsy went ok.Myeloma Uk would be able to answer your queries about what “early” Ig lambada means or @GemmaBCUK or @LauranBloodCancerUK. Myeloma Uk have an MGUS leaflet explaining all about the different paraproteins .Lambada is a light chain.My paraprotein is IgG kappa which is a heavy chain.I am on Watch and Wait blood tests every 12 weeks .There is always the BCUK support line as well,hope that helps and that you are doing ok .Thanks for posting 
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Hi@Gill early IgA lambada ,sorry missed the A,the important bit !
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Hi there
I found out yesterday that I’m going to have 4 months of intensive therapy to get me ready for a stem cell transplant it sounds like what you are going through any advice you have I’d appreciate, worried about what’s going to happen just trying to get my head around it , hope you are keeping well
Gill
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@Gill further to my response to your other post give yourself time and be very kind to yourself to get your head round it all, you have had a scary shock and a stem cell transplant is certainly a journey into the unknown.
We are here for you on our forum and so is the Blood Cancer support line if you would like to talk.
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Hi Gill,
thank you for making contact with me. I’m also going to be having a stem cell transplant, hopefully next month. Is there any specific you would like to ask me? I’m quite open, so happy to answer any questions you have and hopefully I’ll be able to reassure you. Take care Corinne x
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Hi,
Thankyou for your reply , I was wondering what the treatment was like I’m having ,
DARATUMUMAB
VELACADE
THALIDOMIDE
DEXAMETHASONE
Apparently I have no organ damage , and my bone marrow biopsy was well in the limits my only problem was my light chain ratio K was 14.5 and lambda was 1060 so the ratio was to high , so they have decided to hit it hard as they said I was young at 60 to take it , ( before it starts to cause problems ) Did they tell you how long you’d be in hospital to
Thanks
Gill
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Hi Gill, sounds like we’ve got different type of diagnosis. I’ve got Myelodysplasia (Myelodysplastic syndrome (MDS)), so for me I’ll be having 8 days of chemo and bone marrow transplant on the 9th day. As far as I know I’ll have to stay in hospital until my body responds well to the transplant. What type have you got? Hopefully there will be someone on the forum who will better placed to offer info. However I’m more than happy to offer morale support. Do you have a good family/friends support network? X
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Hi Gill
I was diagnosed 2017 with IGGK light chain myeloma 45 PP 1600 light chains bone damage
Relapsed 2021
Just had my second stem cell transplant in April before that my treatment plan was dara/velcade/Dex
I tolerated the regime well. Dara is injected into the tummy over 15 mins
Velcade is injected into the tummy also at the same appointment
Dex is steroids taken in tablet form
You will be given a plan on how to take them
My only issue was neuropathy and neurotoxicity with the steroids. My consultant lowered the doses of velcade and Dex so you will be monitored closely and you must let them know of any little changes
Otherwise is doable I had 8 cycles
My Protein went from 11 to now 2
Light chains 200+ to 1.2
Happy to answer any questions you may have
Re bone marrow biopsy I have gas and air they are painful as it’s into the top of your hip
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Hi there
Thankyou for your reply , it’s just so confusing takes time for it to sink in , I had the bone marrow biopsy and all is normal also I have no organ damage only problem was the light chain Kappa was 14.7 lambda was 1060 so the ratio was out , so they have decided to do treatment before complications, I start chemo and it sounds like what your having , they say 4-6 months then stem cell transplant I didn’t realise your in hospital quite a while , how was the stem cell transplant if you don’t mind me asking
Glad you are doing well
Thanks Gill
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I’m glad I’ve just read this , my Dad whose 84 started DVD treatment last month after a relapse and I was confused after his last appointment when he said he was only having injections for the last few weeks and not an infusion like he did at the beginning . I thought it was always going to be one drug by injection and the other by infusion .
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Hi Gill
That’s good to hear your biopsy was normal and no organ damage
You sound in a strong position to start chemo
Dara regime is a new one and looks to have good results it wasn’t available in 2017 so I’m pleased it was approved
Stem cell transplants involve chemo called melphalan and around 7 days neutrophils drop making you susceptible to infections so the stay is around 3 weeks.
Some find them easy others find them hard going
I suffer with a hyper vomiting centre of my brain which made my recovery harder work and eating and drinking none existent for first 4 weeks
My advice would be for now to concentrate on your regime because that will be enough to start with.
Have you been given infprmstion on the dosing schedule for dara?
There is so much information the mind boggles at times 
Take each day as it comes
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Hi @Gill
I can see that you are getting so much brillaint advice from the wonderful community you have on the Forum.
I will add that you should keep talking to your Haematology team and write all your questions down. Have you been allocated a Clinical Nurse Specialist? They will guide, support and plan with you throughout the different stages.
Do keep talking on here as real life experience and helpful tips are so valuable. Please do call us if you need any support: How to contact Blood Cancer UK | Blood Cancer UK
Kind regards
Gemma
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Hello
I have a book specific for meeting my consultant and my wife and I write down any questions that come up so when we see the consultant we can always go through them. This allows us to focus on normal life and forget about Myeloma to a degree but then we never forget to ask what we thought of or experienced. I am now 2 years in from diagnosis on Monday, had transplant in Jan 2021. All is good but the fatigue comes and goes and is awful annoying but you do learn to live with it.
Your medical team I am sure will be able to answer any of your questions however small or large, if it troubling you they would rather you ask so I would highly recommend getting a book to be able to write them all down
Best of luck
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Hi @Cannon I love the idea of a book, good thinking and good philosophies for life and living with fatigue.
Enjoy yourselves
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Hello! Just wanted to let you know we’ve created new information about myeloma, online and in print, with a group of people affected by myeloma, some of whom use this forum! Order copies of the booklet for you, your family and friends for free from Myeloma booklet and download | Blood Cancer UK Shop or go to our website: Myeloma | Blood Cancer UK
All feedback welcome! Please email information@bloodcancer.org.uk
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