Hi Erica
Thanks so much for your lovely reply. I think it sums up a lot about how I feel and I’m so pleased that you’ve been diagnosed for 16 years without having to have treatment yet. Luckily I don’t work at the moment, but it sounds like you have been through the mill with yours and it’s sad that employers don’t take the time to understand more about their employees’ conditions. I agree that people expect to ‘see’ something to denote the fact that you need to take certain precautions etc, especially with Covid, and because you look fine they think that you’re making a fuss! I really appreciate that there are volunteers like you that I can speak to. I still don’t understand about when I’d need treatment - what they are really looking out for exactly - I think I probably need to learn more.
I hope you have a happy Christmas and best wishes x