|
ET diagnosis finally sinking in
|
|
811
|
11191
|
5 September 2026
|
|
Poems and songs!
|
|
4
|
56
|
18 August 2026
|
|
First Haematology Appointment
|
|
6
|
206
|
17 August 2026
|
|
Feeling Mentally Exhausted/Unable to funtction
|
|
9
|
143
|
12 August 2026
|
|
MDS/MPN overlap with SF3B1 mutation – seeking shared experiences & guidance
|
|
15
|
382
|
2 August 2026
|
|
Is my Smouldering Myeloma progressing to MM?
|
|
4
|
115
|
21 July 2026
|
|
Bone Marrow Biopsy
|
|
35
|
459
|
18 June 2026
|
|
Scared and anxious
|
|
16
|
414
|
29 May 2026
|
|
Hard Lump behind Left Ear
|
|
55
|
346583
|
28 May 2026
|
|
Being on hydroxycarbamide for life
|
|
2
|
334
|
26 May 2026
|
|
How do you get a peaceful nights sleep? Any tips?
|
|
96
|
4790
|
24 May 2026
|
|
Acute undifferentiated leukemia; anybody with similar diagnosis?
|
|
34
|
589
|
20 May 2026
|
|
So scared 😱
|
|
14
|
256
|
20 May 2026
|
|
Lost my mum to ET
|
|
4
|
215
|
12 May 2026
|
|
Recently diagnosed with MDS with a DDX41 variant, need support from others and shared stories
|
|
35
|
838
|
7 May 2026
|
|
Watch and Wait Support
|
|
14
|
1364
|
5 May 2026
|
|
Diagnosed yesterday
|
|
226
|
2741
|
20 March 2026
|
|
Hairy Cell Leukaemia
|
|
8
|
181
|
19 March 2026
|
|
Advice on removing coil with pv
|
|
3
|
77
|
17 March 2026
|
|
Blood Cancer and the NHS
|
|
6
|
125
|
15 March 2026
|
|
Polycythaemia vera ('PV') - awaiting diagnosis
|
|
90
|
649
|
28 February 2026
|
|
First Bone Marrow Biopsy
|
|
42
|
1880
|
23 February 2026
|
|
1 week into a ET & JAK2 diagnosis
|
|
7
|
162
|
23 February 2026
|
|
Child with isolated neutropenia - family history of MDS
|
|
3
|
129
|
20 February 2026
|
|
Recently diagnosed with IgA Kappa MGUS
|
|
6
|
885
|
12 February 2026
|
|
First dose reaction after infusion
|
|
6
|
131
|
9 February 2026
|
|
Coming to terms with a diagnosis of CLL in Oct 23
|
|
10
|
368
|
9 February 2026
|
|
CCUS Diagnosis
|
|
1
|
229
|
2 February 2026
|
|
Essential Thrombocythemia
|
|
28
|
1107
|
31 January 2026
|
|
CMML and diet changes
|
|
8
|
313
|
29 January 2026
|