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Recently diagnosed with MDS with a DDX41 variant, need support from others and shared stories
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14
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210
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6 March 2026
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Diagnosed yesterday
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220
|
2070
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5 March 2026
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ET diagnosis finally sinking in
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619
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7866
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6 March 2026
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Polycythaemia vera ('PV') - awaiting diagnosis
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90
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274
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28 February 2026
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Hard Lump behind Left Ear
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52
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247787
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27 February 2026
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First Bone Marrow Biopsy
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42
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941
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23 February 2026
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1 week into a ET & JAK2 diagnosis
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7
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83
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23 February 2026
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Child with isolated neutropenia - family history of MDS
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3
|
46
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20 February 2026
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Recently diagnosed with IgA Kappa MGUS
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6
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720
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12 February 2026
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First dose reaction after infusion
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6
|
85
|
9 February 2026
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Coming to terms with a diagnosis of CLL in Oct 23
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10
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295
|
9 February 2026
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MDS/MPN overlap with SF3B1 mutation – seeking shared experiences & guidance
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11
|
207
|
4 February 2026
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CCUS Diagnosis
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1
|
96
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2 February 2026
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Essential Thrombocythemia
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28
|
748
|
31 January 2026
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CMML and diet changes
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8
|
156
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29 January 2026
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Transplant imminent
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10
|
186
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20 January 2026
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So scared 😱
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8
|
94
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19 January 2026
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Nearly 2 years post FL diagnosis
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8
|
71
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16 January 2026
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Feel like I’m losing the plot/ feel like I have blood cancer
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6
|
412
|
15 January 2026
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Worried about abnormal blood test results
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10
|
967
|
9 January 2026
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Feeling overwhelmed waiting on child’s results
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3
|
82
|
7 January 2026
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Neutropenia
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9
|
181
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24 December 2025
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Flu Update: Blood Cancer UK resources and support available
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2
|
87
|
16 December 2025
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Thrombocytopenia and blast cell in my otherwise fine husband
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14
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284
|
12 December 2025
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Daughter recently diagnosed with AML
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39
|
962
|
10 December 2025
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Lump on neck?
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1
|
178
|
8 December 2025
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Husband has CLL and i am struggling with my emotions
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4
|
152
|
2 December 2025
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ET JAK2 wth pre fibrotic myelofibrosis
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21
|
414
|
25 November 2025
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Staying Well In Winter - Infection Information Round-Up
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3
|
178
|
24 November 2025
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Plasmacytoma fatigue and dizzyness
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3
|
71
|
12 November 2025
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