Hi all those amazing people here on Watch and Wait.
This is a post to say hello, you are not alone and there is support out there.
Watch and Wait can feel like a weird lonely place with some guilt attached and having to endlessly try and explain to relatives, friends colleagues, what that actually means and why we have been diagnosed with a serious cancer but are not having treatment yet. It’s just exhausting isn’t it? It can cause a great deal of anxiety when you have just been diagnosed with a chronic- blood-cancer.
It took me a while to get my head around it, how was I supposed to explain it to others?
Also what does it actually mean for us now, in the future and mentally, having to cope with the the regular blood testing, scans etc as we go from check point to check point?
I hope I can offer some support here or a thread where people can share.
I was diagnosed with Multiple Myeloma in August 2021. Severe night sweats my only symptom. I dismissed for almost a year.
A friend told me to go see my GP and luckily she very switched on and ran some more in depth blood tests that picked up a red flag. Bone marrow biopsy urgently requested found MM.
It took me a long time for me to actually accept it. My daughter, in her early 20’s and in the same year had just had major surgery had been diagnosed with a life changing illness. I focused my attention on her.
I was terrified of Covid and other illnesses as I was placed on the highly vulnerable list but was in denial about my diagnosis. I received counselling support from Macmillan Cancer support - free of charge and it totally transformed me.
I am now training to be a counsellor, ( I hope to offer support to others in the future, given a life changing diagnosis) I am in part-time work, I’m focusing on the positives ( my daughter is doing much better) and I am taking life one day at a time.
Blood Cancer UK has also been a great point of information help and support, plus forums on Facebook.
If you are struggling mentally with all of this I urge you to seek help, talk to your GP, contact Macmillan, chat on here, talking it through with someone is very helpful.
It’s tough on the mind.
Be gentle with yourself, take it one day at a time and DO NOT FEEL GUILTY that you are on Watch and Wait.
Wishing you all well on your journey.