Wow 23k. I am impressed. I have managed 9k but suffered for it. It is so frustrating not to be able to enjoy walking. I used to be able to walk all day.
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Thsnks for the suggestion I have tried the socks. Didnât work for me. Over the years i have tried many things and the only one to have any benefit is the fat transfer.
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I thought the same thing about the shoes but obviously it is our feet. Let me know if you find any other brands. I have just had to send some Joli back. I had high hopes for them but sadly not comfortable
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Hello ilivesunshine
I too get painful feet. I have to give up my hobby which is dancing .
I was diagnosed with ET, then changed to Polycythaemia vera (PV) . About a year ago. My worse symptoms are the daily terrible itching skin, more than an itch is like a burning sensation mostly on legs and arms. It goes on for hours and it drives me crazy
I have tried different antihistamines, huge dosages and all they do is to make me very tired and sleepy but they donât stop the torment of burning skin.
Can anyone tell me what is âfat transferâ? please??
I wish you all the best and I hope that you get some help with your painful feet.
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Hi @oleconchi. I donât know the answer to your question but hoping @BloodCancerUK might be able to help.
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Sorry you have had to give up dancing. I am still managing to go once or twice a week but it had become more painful recently.
The fat transfer involves fat taken from your stomach by liposuction and put into the soles of the feet
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Sorry to hear that. I also recently had painfall soles of my feet,no swelling or any other issues, but was told itâs not a symptom relating to lymphoma ( clearly is ) try the gel soles you can buy for your shoes. Hope it helps
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Hello @oleconchi,
I am so sorry to hear that your feet are so painful that youâve had to stop dancing. May I ask if you have spoken to your treatment team about this symptom as it sounds quite significant for you?
I am not aware of the fat transfer in relation to your symptoms. I would advise that any procedures should be discussed with you treatment team.
Do take care and call us on the Support Line if you need:
Kind regards
Gemma
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I too have been having problems with my feet now for a while.
I play golf (approx 6 Kms for 9 holes).
About 5 years ago I was diagnosed with Chronic lymphocytic leukaemia (CLL) (W@W)
Have had bad athletes foot in my left for about 20years,
Started having chiropodist supplied inserts for plantarfasciitus(?) about 15 years ago. They have worked a treat.
So inserts are a given.
Roll on to a couple of years agoâŚ
Had my first and second jabs. (Hardly any response).
Noticed a strange burning sensation in my feet at night.
I had also noticed that my feet had lost a lot of the hard skin.
Roll forward to my third jabâŚ(some lymphocyte B cell response ). 18,6Mg/l
More distinct burning sensations in the undersides of the feet, at night and this time with pain and extending (with weakness) to the knees. Spent 6 months trying to get rid of it, as I was not capable of walking around 9 holes properly.
I am also on Blood Pressure reduction tablets. (Amiodipine, plus Candasartan).
Eventually went to the GP. (when I finally could see her!)
She stated that there were some instances of the above drug (Amiodipine) causing problems in feet (swelling and/or pain).
I asked to try a different one (if available).
She switched me immed to another tablet. (3 weeks ago now).
Result - pain in feet and knees has now gone!!
I am, however, having problems settling the BP down again.
So anyone else with foot [pain or burning) have athletes foot, or even possibly BP tablets?
Could it be the T/B cell response to Covid causing problems with bad feet?
Just a thoughtâŚ
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