It is 18 months since my Essential Thrombocythaemia diagnosis, and almost a year since I began taking a daily tablet of Hydroxycarbamide.
Since I spoke on here maybe a year ago, I have retired from teaching singing…a major change in my life, even though I was only teaching part time. It was a very busy year, trying to give students opportunities to perform, and we had a lovely concert at the end of July from which we raised almost £900 for a Ukrainian Musician refugee from Donetsk to help her and her musician partner to settle in London. It is a mixed blessing having retired. Keeping my own voice in trim while teaching, has, I realise, been a very positive thing, and it is time to get back practising, even if not teaching! Very good for the breathing and re-oxygenation of the body!
I had my last blood test results and telephone appointment with a haematologist yesterday, only to discover that while I had previously gone from a reading of 800 platelets to 460 over 9 months, my latest reading was 496! So the new regime will be a daily dose of Hydroxycarbamide, and an extra tablet during the weekend, and my next appointment is being brought forward to a 2 month, not 3 month gap. So yesterday was one of the downs!
Meanwhile I have been participating in the Zoe Health Study, the Big Intermittent fast study involving 1.3million participants. I have been eating within a 10 hour window, and fasting for the other 14 hours. I usually eat within in a 6-7 hour window with an 18 hour hour fasting period, changing only WHEN, not WHAT I eat. What was encouraging was having more energy, and rarely needing to have a daily rest. I have been doing this now for 54 days. Walking is faster, as is the energy to do it. So that has been a welcome ‘up’ for me! Am happy to do what it takes to recoup energy!
The rising platelet levels have urged me to complete my Power of Attorney papers! The things one puts off!! They need to be signed and sent as hard copy, but they have been paid for, and submitted online, so the first important stage has been completed. Not that I am about to pop off, but having almost reached 76 years, it was time to make things easier for my family! Now there is the loft to deal with, but I have no desire to fumble around in there while it is feezing cold!