Oh @Leefer how brilliant to hear from you again with your positive, but practical update.
I am impressed that you also had the strength to accept a bit of help, I certainly needed it.
Unfortunately fatigue is the downside for many of us.
Getting to know what fatigues me has helped and it’s what personally stresses me, and medical, emotional, physical, psychological or practical aspects.
Thanks so much for thinking to support others on our forum, it’s what it makes it a very special place.
Yes, have a great weekend and please do let us know how you are getting on.
Great to hear from you and know that you feeling a lot better than you were.
Posts like this are so important for others to read. Sometimes it seems like there is no light at the end of the tunnel and this is a really positive post.
Fatigue must be tough, especially when you’re a lorry driver.
Take good care of yourself and don’t work to hard
Thank you so much for returning @Leefer, I love this update! I’m really so pleased to know you’re doing better after what sounds like a pretty scary, maybe even traumatising time after diagnosis.
Seen your posts around the forum so it’s great to know how you’re doing now. Selfishly I’m glad that taking hydroxyurea after a few years is still working for you as that’s my main treatment for the Polycythaemia vera (PV) I was diagnosed with last year. Hopefully it’ll work as well for me and others with Myeloproliferative neoplasms (MPN) here as it does for you, although I know the fatigue is hard work in and of itself.
Glad to hear that counselling has helped you too—don’t know what I’d do without mine! It’s helping me learn to adapt to fluctuating energy levels and fatigue which have made planning anything a constant juggle, like which plan will I drop first to keep the others in motion…
I look forward to further tidbits of wisdom from you @Leefer, when you have the spare energy to share of course!
Lovely hearing from you @Leefer and you’re so right, being diagnosed with anything with the word “cancer” will be scary and so it’s great to hear that you’ve managed to keep hold of something before your diagnosis.
Also thank you for a positive story on hydroxycarbamide as I know people are often scared when knowing it’s a form of chemo and reading all the potential side effects. So you sharing your experience and that it’s allowed you to return to work is great news.
For sure the fatigue is so often passed off as a minor thing in the grand scheme of things to the medical minds but from a patient perspective it can be the one thing that massively effects your quality of life and mentality to fight through the challenging times.
Stay strong and be sure to keep in touch regardless of the time between your updates
