Hi
I am new to this forum and not quite sure what I am doing. I was diagnosed with PV a month ago. I was told at a face to face consultation that I was on ‘watch and wait’. During a telephone consultation today I was advised to consider having weekly interferon injections to prevent further clots forming. They are going to forward the info. Has anyone else had these and how have they managed any side effects?
At present I am finding the extreme fatigue difficult to manage. It is too hot to venture far from my electric fan. Being offered treatment makes it seem more real. More threatening somehow. Being new to this relatively rare condition I feel I must trust the consultants advice but would like more information if possible.
Kind regards
Marylin