Oh @Unclejack having read your responses I am even more confused.
I agree with @Nichola75 's response.
I had a chuckle at your wife’s assessment of you having an obsessional disorder or as you say a 24/7 interesting challenge into researching.
Please do let us know how you get on and look after yourself
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@Erica @ChrissyD @Nichola75
I contacted my GP this afternoon to see if my X rays results had arrived as it’s 2 weeks tomorrow they were carried out. No they haven’t!! Strangely my wife who as exactly the same symptoms had a ultrasound scan on Tuesday and the results have come back with a appointment at the muscle skeletal unit now that’s what you call service!
Wow it’s all very confusing.
Back to the computer. Best wishes unclejack.
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Hi @Unclejack it is confusing isn’t it, but I suppose it depends on which consultant checks them, perhaps yours is on their hols.
I am always an inpatient patient and I still believe in forming an orderly queue.
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@Erica
Hi Erica changing the subject, knowing you like your music I just found two great recordings by Brook Benton and Marvin Gaye. Not heard them for many years. ‘Rainy night in Georgia’ and ’ Abraham Martin and John’ both on u.tube. Both classics from that golden era.
Best wishes and thanks for your support
Unclejack.
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Hi @Unclejack
Ah. I see now why you were put on all that medication including the statins! After a TIA, a lot of medications are routinely prescribed on a “better safe than sorry” basis! I had a friend who had healthy statin and BP levels but had a very minor TIA and was then prescribed the full works, including blood pressure medication which lowered his BP so much that he collapsed on a walk (after just 1dose the day before!) and cracked his head on a rock on the Isle of Wight and ended up in A and E! When he mentioned the medication he’d had, the A and E doctor just sighed and said that BP medication in his experience was the cause of so many accidents due to people passing out because their BP was too low!!
Anyway, it explains why they were so keen to put you and keep you on statins!
Good luck with your researching and decision-making!
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@ChrissyD @Erica @Nichola75
Contacted GP today as no x.ray results have arrived. At our local hospital apparently x ray results are taking 8 weeks or more to examine!!
Overwhelmed they say! Unfortunately for me my back decided to join in the fun yesterday admittedly I injured my back in 1997 so hopefully the pain is not related to Polymyalgia.
Broken Britain comes to mind. I really pity the young who are ill they really face a grim future!
Strangely I have managed to put my Chronic myelomonocytic leukaemia (CMML) completely out of mind as except for low platelets and neutropenia on the blood tests feel well. Only problem being I have refused pain killers as I fear it could affect my blood test labels. I feel just the same about antibiotics.
Perhaps I am wrong in this but my blood levels have been stable since diagnosis and I feel only take medications as a last resort. Not happy about taking statins with such low cholesterol numbers but haematology says the Chronic myelomonocytic leukaemia (CMML) has caused very low cholesterol but I have researched various websites and can find no supporters evidence! But these days it seems some clinicians follow agendas NOT evidence.
Best wishes to everyone
Uncle Jack.
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That’s a long time to wait for results isn’t it! Hopefully they come back sooner than that 
Hope that back pain eases soon.
Have you spoken to your team about your concerns around your medication?
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@Nichola75
Hi Nichola, yes my GP contacted Haematology about the continued use of statins. I think she would have probably reduced the dose but was overruled. Never mind, next appointment in July I will ask for a explanation from haematology. Strangely my back pain is a lot better today!
These pains are odd seem to move around. Shoulders one day, then neck, then hips. Admittedly seems occasionally to improve. Looking back I think arthritis runs in the family. I well remember just before I started school having dreadful pains in my legs the GP diagnosis was rheumatism my mum said he’s only four it can’t be that! It can happen at any age the GP said!! It did clear up though. Are you alright? I keep going on about myself but there’s
people a lot worse off than me on the forum. The Chronic myelomonocytic leukaemia (CMML) folks on the forum seem to be holding their own. I think Chrissy D has many, many years of fighting this and Erica who has a different type of Leukemia has been diagnosed for 20 years I believe. Still on watch and wait as well. As for pain killers I just take paracetamol. Before this started I used ibrugel ointment on my back found the 10 per cent strength quite effective. But ibruprufen as a reputation for bleeding and having low platelets don’t use it now.
Best wishes unclejack.
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@ChrissyD .
Hi Chrissy. I think the initial diagnosis of no stroke was correct. The call back three days later by a new doctor I think was a better safe than sorry diagnosis. I had a full set of tests and nothing was wrong until the MRI scan which spotted something they called infarch but they said it was much older than when my event occurred. Then COVID arrived and nobody at the stroke clinic replied so I couldn’t ask any questions. Perhaps the infarch was caused by a couple of concussions I had in my sporty days. My wife who has T2 diabetes has always been convinced my problem that particular day was caused by low sugar due to me working out before breakfast when sugar levels are low anyway. On reflection she could be right, and heavy exercise on a empty stomach is probably somewhat stupid thing to do should have scoffed a Mars bar beforehand !! Anyway hoping you are well best wishes
Uncle Jack.
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Oh yes, @Unclejack a Mars bar helps you work, rest and play as the old advert used to say, those were the days. !!!
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@Erica
Hi Erica. 6p old money per bar! As a chocoholic I loved them. I’ve certainly kept the dentist busy!
To make things worse I was a proud Cadbury Fruit and Nut case! Happy days! All my family are long gone but never a day goes by without me remembering those happy childhood days.
Best wishes unclejack.
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@Erica @Nichola75 @ChrissyD . Morning all.
Finally received X ray results of pelvis. Calcification of tendons etc. A few more exercises from Physio. Now got printouts for shoulders, neck, back, and pelvis exercises!! Knuckles getting worse , to cap that another filling fell out of front tooth luckily no pain yet.
E.mailed the senior nurse at blood cancer (GEMMA) about dental treatment. Got some great advice about extractions. Strangely for all this I feel quite well. I think I’m just going to accept that the pains in shoulders etc are not treatable. I’ve read up about calcification and it seems not a lot can be done. Have been exercising the affected parts for nine months with no benefit. As an aside the wife had a ultrasound on shoulder and a steroid injection and it seems to be settling down.
At least the weather has picked up.
Anyway I hope everyone is still doing okay.
Very best wishes unclejack.
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Oh @Unclejack so you have more exercises than I have for my Pilates homework.
It is final straw time when a filling falls out as well.
I am a great one if I feel quite well I just carry on with life.
My husband has rheumatoid arthritis and all his joints were playing up so he saw his consultant and had an injection in his bottom, it did wonders.
Look after yourself and keep doing the exercises whether they help or not xx
.
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Great to get an update @Unclejack. I’m sorry that it’s something you just have to get used to,. As you said, the sun is shining which always makes everything that little bit better doesn’t it! And who knows, the new exercises might work their magic!!!
Have you got to have some extractions?
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@Erica @Nichola75
Morning all, both of you are quite correct. Being a man every pain or ache is disastrous!! I should be happy that my blood tests are stable in fact better than at time of diagnosis. Just feel a bit low. Anyway thanks for your support it really is appreciated.
Very best wishes unclejack.
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I think feeling a bit low is completely understandable. You have a lot going on. Don’t give your self a hard a time. We all have times feeling low and it’s important to look after yourself and be kind to yourself.
We are always here to listen 
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Hi there
Hope you’re ok
I thought I would let you know that my husband was diagnosed with PMR
HIS symptoms were quite severe for the first few months. We learned that for some reason he could expect symptoms to improve after 2-4 years
After 2 years - low and behold- the symptoms disappeared! He is 63 and was diagnosed 7 years ago/ he has not had a relapse at all.
I hope this gives you hope- he was on steroids throughout.
Good health to you
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@Lainers57
Hi just read your comment and thanks.
My X rays of pelvis and shoulders revealed calcification of pelvis ligaments and osteoarthritis and bone spurs in shoulder and calcification of ligaments. Re directed again to physio. This all started last September completely out the blue. Didn’t take much notice at first thought wear and tear just got to live with it. Then my arms developed similar pains and fingers base of thumbs joined in! I had heard that autoimmune diseases were increasing so I suspected rheumatoid arthritis was developing.
Attended the GP practice who have been excellent throughout my Chronic myelomonocytic leukaemia (CMML) battle. The GP said she suspected Polymyalgia rheumatica, which I had never heard of. She explained that it usually affects shoulders and hips and oddly can affect the eyes which is serious and requires immediate treatment. Anyway had tests and this didn’t seem to be the problem. Some days it wanes other days are worse. Strangely my wife developed exactly the same symptoms in her shoulders, following a X-ray and then a ultrasound she was given a steroid injection into the shoulder and this has improved her situation. this morning I mentioned our problems to a neighbour and he was amazed he said he had recently developed exactly the same symptoms and his daughter had as well!! Just can’t understand what’s going on. Anyway thanks ever so much for your advice. I am very concerned. Before my Chronic myelomonocytic leukaemia (CMML) diagnosis I had symptoms which nobody could explain after eighteen months of blood tests a marrow biopsy revealed the diagnosis. I really pray that something else very unpleasant isn’t on its way.
But as it seems quite a few on our street are having the same prob including my wife none of whom have blood cancer then it must be a unrelated condition. Please if you come across others with this problem let me know. Good to hear your husband has recovered. I religiously do my physio 3 times a day but after a year it has made little difference.
Best wishes unclejack.
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Hi. I have recently been diagnosed with Chronic myelomonocytic leukaemia (CMML) and have had Polymyalgia Rheumatica for 3.5 years. There is a forum on Healthunlocked sponsored by the charity PMRGCAuk which is excellent. I have learned a huge amount there. If you search for “healthunlocked” and once there search for “PMRGCAuk” you will find it. I strongly recommend you join. A couple of points:
- PMR diagnosis: raised blood markers CRP and ESR indicate PMR (and other types of inflammation). My GP tested whether this was due to PMR by prescribing a short course of Prednisolone, 15mg daily. He said if my symptomes were dramatically reduced by this the PMR would be confirmed. This was the case. Pred is used to treat PMR and the dose is tapered slowly over a long period. Not all GPs understand this I’m afraid.
- Eyesight damage: PMR does not cause blindness but it’s related autoimmune condition Giant Cell Arteritis can do so unless caught early.
@AJBass
Hi thanks ever so much for your advice, I will definitely log in to the website. I have been trying physio for 10 months with no effect. It started in my shoulders and neck then spread to my hands and pelvis. X-rays were taken on shoulders and hips and pelvis which identified some calcification and osteoarthritis. I thought at the time this had similar symptoms to rheumatoid arthritis but GP was suspicious it was PMR. I hear that various autoimmune diseases are increasing alarmingly. I will attend my next physio session and ask to be referred back to GP. As a fellow Chronic myelomonocytic leukaemia (CMML) sufferer I am doing quite well. Had the first symptoms late 2021/early 2022. Took 18 months to confirm what the problem was. Luckily still on watch and wait and blood tests stable. I was really worried that all these arthritic type pains were related to the Chronic myelomonocytic leukaemia (CMML), but medics said no thank god.
How are you, Chronic myelomonocytic leukaemia (CMML) is quite rare. From the start of the first symptoms I reckon I started developing it over 3 years ago. Strangely I was discussing my possible PMR symptoms with neighbours and two of them were suffering exactly the same symptoms. As is my wife. She had a steroid shot in the shoulder which helped but the effects are beginning to wain Just one more question, did you take painkillers? I only use paracetamol as I worry anything stronger may affect my blood count.
Thanks again very best wishes
Unclejack.