PV itch update

Hello @Drewplymouth

Thank you for posting your update. I’m so sorry to read about your itching, and how long you’ve had to cope - 3 yrs is far too long. It’s good to know you’ve been taken off the Hydroxycarbamide and swapped to Ruxolitinib, I do hope this improves your symptoms and you can be ‘itch-free’.
There are a few other threads about itching & Polycythaemia vera (PV) on the Forum, which you may want to read, or if you choose to reply in them it alerts those that have previously posted within it.
In case you’ve not found it, this is an informative thread: Burning itching PV - #62 by Willow You might want to connect with others that have shared their experiences within it. You can use the search bar at the top to find other threads too.
Please keep us posted on how you’re feeling and getting on with the Ruxolitinib.
Best Wishes, Heidi (Support Services Nurse)

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