Recent diagnosis CMML

@Unclejack Lovely to hear from you & for your best wishes, thankyou. Yes seems to be lots going on for everyone here :expressionless_face: . Like you say, it’s a great support we have. I value it a lot! :smiling_face_with_three_hearts: Sorry to hear about your bruising & ankles. But it sounds like your bloods are behaving themselves so that’s positive. And great you are getting on your exercise bike :bicycle::+1: Hope your wife’s sneezing eases, it is odd how some people do suddenly start suffering from hayfever. Best wishes to you also :face_blowing_a_kiss:

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Hi @Unclejack @Sisi @Logsie @Lyndam @Erica

It seems that Bank Holidays are a hitherto undocumented medical risk! :woman_facepalming:t2::joy:

@Unclejack you are becoming a “medical man of mystery” with all your unusual symptoms!. Hoping for a gradual recovery for you. :crossed_fingers:t3:

@Sisi Oh my. Forcing children to use those awful French toilets must surely be classed as child cruelty?!Your poor sister -but your 10year old self didn’t sound phased by it?! :woman_shrugging:t2::joy::joy:

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@ChrissyD French toilets = child cruelty :laughing: :face_with_hand_over_mouth:Yes, I wasn’t phased at all by them. And wondered why my sister was blubbing! :joy:

And yes, please wrap yourself up in cotton wool today! :face_blowing_a_kiss:

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Hi @Lyndam I have been thinking and you really show so clearly how we all have to take responsibility for our own conditions.

Look after yourself

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Oh @Lyndam as @Sisi says I have also heard great things about Tina the musical and what a 70th birthday treat and with your family. Have a very Happy Birthday and enjoy

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Hi @Sisi @Logsie @ChrissyD @Lyndam @Willow @Unclejack

Hi All I dare not start talking about public loos, it is a continual problem for me

However actually a neighbouring borough to us has an agreement with most of their pubs to let members of the public in need to use them.

Also I have a Radar key. ‘The RADAR Key Scheme or National Key Scheme (NKS) offers disabled people independent access to approx 10,000 locked public toilets around the country.’

We are covered under the Disability Discrimination Act or equiv as disabled.The keys can be purchased on the internet for a fee of under ÂŁ10.00 from reputable sites.

I hope this helps

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@Erica thank you Erica, and yes we do have to take some responsibility for our own health. Having said that I do have a wonderful hospital, Addenbrooks, and there my chart is extremely good. Take care Erica and stay as well as you can.

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@Erica Oh Thankyou for this info. I will check it out! :+1:

@ChrissyD

Morning Chrissy

Woke up this morning with a swollen little finger (please don’t laugh). Since I had that dreadful ankle sprain in May strange things have happened one after the other. Perhaps the shock caused a reaction. The mystery is my bloods are stable and I feel quite well except for my arthritic knees and my left heel which makes walking painful. I report these problems hoping that someone has had a similar experience and can explain it. Never mind my Chronic myelomonocytic leukaemia (CMML) symptoms started three and a half years ago and my bloods are actually slightly better than then. 75 next boxing day so I’m not doing to bad. And certainly better than many. Hoping that all our friends see improvement very soon.

Bestwishes unclejack.

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@Sisi @Unclejack @Logsie @Lyndam @Erica

Morning All. Hope all of you survived the Bank Holiday of Doom!!:joy:

@lyndam Have a great time celebrating your Big Birthday.

@unclejack Oh dear. Another mystery. Have you scratched or damaged your little finger in any way? Keep a close eye on it and yourself for signs of infection?

@lyndam I also have a great nurse administrator on My Chart who is so prompt and efficient with his responses. Maybe the same one? A real star :glowing_star:.

Back to the tomatoes :tomato: after my social weekend! :joy:

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Afternoon everyone! @ChrissyD @Erica @Lyndam @Unclejack @Logsie :hugs:

Survived the bank holiday! :grinning_face: Without having to visit A&E!

Saw GP this morning with my husband. He confirmed he hasn’t got a bacterial infection causing his diarrhoea ( sorry if too much info :grimacing:) And have referred him for colonoscopy to see what’s going on. Should hear in the next few days. In the meantime he doesn’t have to restrict his diet. He was going a bit mad with eating bland foods poor thing. He loves cooking also, so it’s been quite tricky for him. The GP said just don’t have a vindaloo! :curry_rice::smiley::zany_face:

@unclejack hope your finger gets better!

@Lyndam @ChrissyD I have MyChart envy! Sadly our hospitals don’t use that system :face_with_diagonal_mouth:

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Hi @Sisi @Lyndam @Erica @Logsie @Unclejack

Glad you made it through the Bank Holiday without an A and E visit @Sisi . My sister’s 18month old grandchild decided to jump off the top bunk bed (:woman_facepalming:t2:) on the morning of her birthday picnic and was sick afterwards so that was an A and E visit to check for concussion! Kids! :joy:

Hopefully not too long a wait for your husband and at least not having to eat the bland foods. :+1:t3:

Yes wouldn’t it be wonderful if the NHS had some really joined-up online support for patients?! Hospital and GP systems often don’t “speak” to each other. It is thankfully much improved since the bad old days when everything was filtered by what the doctor decided to impart to a patient -as though we shouldn’t know what was happening to our own bodies! :face_with_symbols_on_mouth:When they wouldn’t tell patients that they had cancer! But would tell the family! :woman_shrugging:t2: Hopeful of improvements but new initiatives move very slowly in the NHS. :cry:

@ChrissyD Oh no! We jinxed it about the bank holiday A&E visits! :grimacing: Sorry to hear about your sisters grandchild, hope they’re doing ok. Couldn’t have been nice for your sister :face_with_diagonal_mouth:

Jumping off a bunk bed reminds me of my friends daughter who decided to jump off her bunk bed, broke her leg & the hospital plastered up the wrong leg!!! :flushed_face: They didn’t realise until the daughter kept complaining her leg still hurt! :grimacing:

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@Sisi

Oh no. Thank goodness it was only a plastering done on the wrong leg! Could have been so much worse! :woman_facepalming:t2::joy:Honestly, you have to be on the case all the time!

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