@ChrissyD just a quick update as I have been away on holiday in Torquay. Had a lovely time, other than the hotel reminded me of faulty towers the tv comedy. Went to the Eden project which was really good, loved the domes. I am off to the hospital on Thursday to see the herpetologist, so no doubt will get the alcohol grilling again. Hope you soon get your problem sorted and feel better.
Take care. Lynda
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Hi @Lyndam
So glad you had a nice break. The Fawlty Towers hotel sounds hilarious! 
Torquay was supposed to be where the fictional hotel was located I believe!
Eden project is so impressive isnât it?
I really hope that you donât have yet another inquisition about alcohol. Given that you donât drink, you really need to press the consultant on what alternative causes might be and what tests there are.
Iâm still struggling with IBS -or whatever it is - but have managed to get a GP referral to hospital gastroenterologist. Goodness knows how long that wait will be. 
Meanwhile I was very relieved to get a normal result from the bowel screening programme so the 2 week cancer pathway I was put on in May was a complete red herring!
Sowed some broad beans on the allotment yesterday on a really balmy sunny day. 
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Hi @ChrissyD. Yes the Eden project is very impressive. It is the gastroenterology department I am going to, apparently they deal with the liver and I am to see a particular specialist. Well I will soon find out I hope. Suspect it will be put down to just a fatty liver. Hope you soon get your problem sorted and donât have to wait to long. Lynda
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@ChrissyD So glad to hear the bowel cancer screening came back all clear, itâs such a relief isnât it!! As @Lyndam has said, I really hope you can get your appointment soon & things get a bit easier for you.
@Lyndam Great to hear you had a nice time in Torquay & very best wishes for your hospital appointment.
Take care all 
Dear all, I am still a silent reader here and happy that all of you are doing so well and keeping up the positive spirit/energy 
Wishing you all the best 
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Hi @Sisi
A propos of your husbandâs diagnosis, did you know that this week is Diverticular Disease week?! Guts U.K. are putting on a free webinar on 16th October which you might be interested in. Hereâs a link to register
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@Silke Thank you for your best wishes! Best wishes to you too
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@ChrissyD Oh Thankyou for this! I didnât know it was Diverticular Disease week! Weâll take a look 
Also we had good news on Monday at my husbands neurology / stroke follow up. Theyâre very happy with his progress & have discharged him! Obvs he needs to continue with his anti platelet meds & statins, but we came away feeling very positive 
Routine bloods this week for his Chronic myelomonocytic leukaemia (CMML) & then seeing local haematology consultant in a couple of weeks. I canât believe itâs October!
Take care
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Hi @Sisi
Yeah. There must be an awareness week for all the diseases under the sun! 
Not many tickets left so book soon!
All great news about your husband being discharged and everything now under control! Youâve both had a right old âwhirlwind of worriesâ since you first joined the Chronic myelomonocytic leukaemia (CMML) Chat Forum.
And thanks @Silke for popping in to wish us well.
Itâs ridiculous (and a bit sad 
) that I often feel more support on here than from âso-calledâ long term friends. Intelligent people (supposedly) who thought that Covid was all a hoax and that wearing masks was an affront to their personal liberty . They simply couldnât understand why we were being so vigilant about shielding and avoiding risky situations because of my Chronic myelomonocytic leukaemia (CMML) and not having a decent immune system! 
I got a email to say that my referral has been confirmed so itâs now watch and wait to see when an appointment comes through. 
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@ChrissyD Thank you yes, Iâve booked 
And I really empathise with you regarding support. I really donât know what I would have done without our âfamilyâ on here 
I think friends seem to want to support but are sometimes scared or perhaps just donât fully understand the complexities 
Good to hear your referral has been confirmed! Crossing everything I have for it to come through soon for you! 
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Hi @Sisi and @ChrissyD and @Lyndam and @Unclejack etc.
Firstly, good news for you and your husband @Sisi
Also @ChrissyD I am glad your referral has been confirmed, people forget about other conditions have watch and wait in some form or another.
Because I was diagnosed several years ago people do not realise that I manage the symptoms I was diagnosed with on a daily basis so I agree with @ChrissyD I get my support on our very special lovely supportive forum and the wonderful staff of Blood Cancer UK. I feel really blessed, thank you all.
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@Erica Thank you 
Lovely to hear from you & lovely words. Thankyou for being here
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Hi @Sisi @Unclejack @Logsie @Lyndam @Erica @Willow @Duncan @Heidi_BloodCancerUK
Hi all and sorry if Iâve missed anybody or included you in error but just to let you know that Leukaemia Care have just updated all their resources on Chronic myelomonocytic leukaemia (CMML).
@Heidi_BloodCancerUK could you share on a general post somewhere please? I appreciate that BCUK has their own resources too but itâs good to have a choice!
Booklet for download or ordering :
Fact sheet: https://media.leukaemiacare.org.uk/wp-content/uploads/20250930132044/CMML-Factsheet-Web-Version.pdf
Happy browsing!
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Brilliant @ChrissyD Thank you so much for sharing
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Hi All
Another date for your diaries from me!
Dan Wiseman is joining Leukaemia Care at the next Chronic myelomonocytic leukaemia (CMML) support group meeting. Registration link if people are not already registered on zoom for joining link and notifications: https://us02web.zoom.us/meeting/register/tZ0qceqgqjkjEtT9y5z7x2flbC7xpzXp4Dfg
Meeting: 2pm Thursday 13thNovember. Next Leukaemia Care Chronic myelomonocytic leukaemia (CMML) National Virtual Support Group meeting.
Dr Dan Wiseman will join us and give a brief intro/outline overview of Chronic myelomonocytic leukaemia (CMML) treatment & care, with updates since we met with him last year + Q&A discussion
Hope you can join. It will be nice to put faces to names.
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Thank you for posting about the updated booklet, itâs good to know about.
Also thanks for mentioning and linking the Chronic myelomonocytic leukaemia (CMML) meeting too.
Theyâre useful to know about so we can signpost others if they ask us about Chronic myelomonocytic leukaemia (CMML) information or support groups.
Thanks 
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Hi @ChrissyD Thank you for the link, and I am looking forward to the next zoom meeting. I had my visit to the liver specialist last week and he thinks I just have fatty liver disease, and wants more blood tests done. His first question was about how much alcohol I drink, and I just burst out laughing and again reiterated I am tee total. He was so surprised by my liver blood test reading as I donât drink, but said when the bloods are redone if the reading is still high they will do more in-depth blood tests. Have to wait for an appointment to have them done, gone are the days when they sent you to phlebotomy department with a slip of paper and did them while you were there. Hope you are well. Lynda
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Hi @Lyndam
Itâs great that you can laugh about the inevitable alcohol question!
Yes, getting a blood test these days can involve a long wait. I now book my test before I get the form from the GP as I can get the latter within a day but the blood test appointments might be 2 weeks away! Hopefully, the results will convince the consultant of the need for further investigations. I know that both my liver and my spleen are enlarged as a result of the Chronic myelomonocytic leukaemia (CMML) and I do wonder if this is linked in any way to the awful IBS-type symptoms I am getting? Do you know if your liver/spleen are enlarged? Maybe liver function is affected? Who knows. 
Iâve been referred to hospital gastroenterologist but no idea about what the waiting list might be -other than I am to ring hospital if I donât hear by 2nd December!
Take care
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Thanks @Heidi_BloodCancerUK
With such a rare disease, we need to try to contact as many people as possible -especially as Dan Wiseman is probably the UKâs most experienced haematologist in Chronic myelomonocytic leukaemia (CMML).
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Hi @ChrissyD My liver and spleen are not enlarged, they keep checking this. So no idea if the liver problem is connected to the Chronic myelomonocytic leukaemia (CMML). Hope you soon get your appointment through and get sorted.
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