Hi @Sisi That’s really good news that your husbands bloods are still stable, long may they stay this way.
Thankyou @Lyndam for your message & kind words ![]()
Hi @Sisi @Lyndam @Logsie @Unclejack @CathyP @Rick @Erica
Just a quick update to say that amazingly, my full blood count test results came back the same as usual! I was so surprised given how I’m clearly not absorbing many nutrients from food going straight through and still losing weight!
I have an Addenbrookes appointment on 11th and a gastroenterology appointment at local hospital on 20th. I cannot access the CT scan report on Patients Know Best until 27 November (over a month after it was done!
) and I’ve had to submit yet another sample to be reviewed! I’m going to ask if I can be referred by haematology at Addenbrookes for an additional opinion there as I don’t have a huge amount of confidence in local hospital -considering this is the 4th time in 7 years that I’ve been to that department , had all manner of tests and just told I have IBS and basically go and get on with it!
I do wonder if my very enlarged spleen is having any impact on my other digestive organs but nobody seems interested in pursuing that and presumably would have shown up on CT scan? Another mystery to solve! ![]()
Hi @ChrissyD So pleased to hear your blood tests results are stable!
I hope the appointments go well & you can get a bit more clarity, in what must feel like forever that you’ve been on the search for what’s going on!!! ![]()
I think the additional opinion sounds a very sensible idea. And was my first thought when I started reading your message. Yes, interesting re your thoughts on your enlarged spleen…
Hope you’re having a nice Sunday?
Take care ![]()
Oh @ChrissyD what complex beings we are.
Also I have also found that there are some tests that I have had to wait a long time for the results when other times I don’t. I suppose it is what they are looking for. Personally I would like to get the results from a consultant and not an App first, although conversely I suppose it does mean I can get my questions for my consultations from the App results.
Your additional opinion, especially at the specialist Addenbrookes, sounds good to me.
I will be thinking of you on the 11th (my sister;s funeral) and the 20th (my son’s birthday).
Please do keep updating us and yes, waiting is the worst part.
Be very kind to yourself.
Oh @Erica
Thanks as always for your kind thoughts. So sorry to hear about your sister. It must be so sad to lose a sibling.
I always like to read my results before I see the consultant/GP so I can research and prepare my questions in advance rather than be caught on the hop and then forget to ask the right questions! Also worry about possibly be given only the information they choose to impart! I think it’s absolutely wonderful now that we can see our own records!
Hi @ChrissyD good that your blood test results have not changed. I agree with you wanting a 2nd opinion from the Addenbrooks gastroenterology team, as I cannot fault the care from Addenbrooks. I have a similar problem with food upsetting me, but not as bad as you seem to have. They did a colonoscopy and I was diagnosed with diverticular disease, so just careful with what I eat. Hope you soon get this sorted. Take care.
Hi @Lyndam
Thanks Lynda. We’re both big fans of Addenbrookes aren’t we?! Not sure if my request will be doable but I remember I was referred there once before many years ago by the haematology dept for an umbilical hernia spotted on an ultrasound. So fingers crossed.
Wonder what the waiting list will be though?
I’ve read that the older we get, the more likely that diverticula will be discovered on a colonoscopy! I’d like to think this illness was diverticular disease but I think it’s been too long-lasting for that, plus I haven’t had a temperature or other signs of infection? Glad to hear that your diverticulitis is managed by careful attention to what you eat and hope this prevents flare-ups. I know it can be very painful. ![]()
Hi @ChrissyD Yes we are fans of Addenbrooks. All my scans etc are mostly done there. I have been lucky with all my referrals as they have been no longer than a couple of weeks, even gastroenterology. And yes I have read that diverticular disease is more likely as we get older.
Hope they soon get you sorted.
Take care
Thanks @lyndam
That sounds very encouraging re the waiting times. Thanks so much. ![]()