Hi Everyone,
I still think the latest advice is fuzzy!
I’m lucky to have a direct email address to my consultant.
I have used this 3 times during the pandemic. First, on Tuesday 17th March, when the list of vulnerable people was shown by the government at their afternoon session & it listed anyone without a spleen…I remembered that’s why I take penicillin everyday for the rest of my life. They don’t know if the 10 day chemo Prior to SCT kills your spleen or not.
To my surprise she rang about an hour later & told me to self isolate & start getting my groceries on-line. Well, we all know how tricky that was then! She said to revert to the guidelines from emerging after transplant.
Second, when I didn’t receive an NHS letter. She stated that they had no input to who was listed. (I also found out yesterday, that the GP has no note on my file that I received one either!)
She also said I didn’t need to shield & my husband could go out shopping.
We are hunkered down with my 85yr old father & my husband has allergic asthma, so we’ve not been going out to get anything.
Thirdly was the end of last week, I wondered if I could have my family in my back garden as it was my grandson’s 2nd birthday.
She said yes that’d be ok with social distancing but I still wasn’t to go to the shops.
So at present I’m desperate for a haircut, which my hairdresser, who is a friend anyway, may do for me next Saturday morning, before she starts on the general public, using PPE & I shall wear a mask. There’s no way I could sit in her little salon when I know others have been in there, even though she’s intending to deep clean daily & taking every precaution she can. I’d be on edge, desperate to escape.
I have no intention of going anywhere fast, with others social distancing. However, I will start to have a few friends in the garden for a catch up cuppa when the weather permits.
How do others feel?
Have you been able to speak to your team for personal advice?
Stay healthy & safe
Christine
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