Yes its dvdt. Starting tomorrow at 12
Sorry i meant DVTD got letters muddled
It doesnāt matter which way they go
I had DVD without thalidamide back in 2021
I found it a tolerable regime
The first day of chemo can be a long one.
I took my phone as I use it to browse etc
I like to talk to the other patients
I had pre meds an hour before (antihistamine steroids Dex and paracetamol) you will be monitored to make sure you have no reactions
Dara and Velcade are injections into your tummy just below tummy button
Thankyou for the info thats very helpful. Didnt know where they done injections . Found out today i starting at 12 tomorrow. They said it will be 4 or 5 hours and they will show me how to do injections as i will have to do them at home myself.
How things change I had to go each week to have my velcade and dara injections
Iām on maintenance dara now every 4 weeks which the unit administer
Yes i have to go weekly for the two injections. The injection i got to do daily at home is the blood thinners. Done the first chemo thursday. Got there at 12 OāClock and was allowed home at 7p.m. Was a long day but not as bad as i expected. Got offered teas and coffee and brought choice of sandwich and a cake. Had a lovely lady in chair next to me who chatted and put me at ease. She said when she had gone her first time there was a nice man who talked her through it and made it a positive experience, and she had vowed to do the same for someone else. Which she got to do with me. I was rather scared and nervous but her kindness and taking the time to chat to me really made a difference.
Oh @Sue72 we have the opportunity meet some lovely people, we are so blessed.
Love this
There are some lovely people in the chemo suits that we meet along the way to help us feel less anxious.
The first time is a long day as your checked for reactions your next ones shouldnāt be so long.
Ah yes blood thinners I had those to do at home too.
I was thinking things had changed regarding the others ![]()
I had DVD for my first line of treatment which was relatively easy going. The stem cell transplant was more difficult. I then had 3 years of remission that unfortunately coincided with Covid. My relapse came in 2023 and I went onto 18 months of Carfilzomib which was very tough and gave me quite a lot of side effects. Since April, Iāve been on Lenalidomide maintenance and was told that this is for life. I donāt have to go into the hospital much except for routine reviews but thereās always a friendly face around and the nurses are usually very pleasant. The anxiety is understandable though. Let us know how you are getting along.
Hi Barkingdog! Iām on that trial, started 2 eeekszago- how are you and hubby doing? X
How are you getting on Sue?
Hey there @Byrnebaby, itās great that youāre reaching out to others, really helps me around the forum too. May I suggest adding @ before a memberās name and it should send them a notification, otherwise folks might not know!
Ahh thanks @Duncan ! ![]()
@Barkingdog how are you and hubby getting on now? Hopefully things have settled a bit for you both x Iām also on this trial, just coming to the end of my 1st cycle x
@Sue72 how are you doing now Sue?
Thanks for asking. Had my stem cell transplant in october and just finished my 6th cycle. Got consultant appointment 11th feb to find out numbers and where i am at. How are you doing?
@Bunty jowcate you getting on now Bunty? Were you on the radar trial?
@Sue72 hope your appointment went well x