Hi. I was diagnosed with Essential thrombocythemia (ET) with JAK 2 two weeks ago. I have had good support from medical, family and colkeagues, but i am struggling to sleep. Myplatelets are quite low for Essential thrombocythemia (ET) although i do have symptoms. I am also due to have a hysterectomy in 2 weeks.
I am trying to be positive and keep working (I am a teacher for SEND children), but am not sleeping. The moment i try to sleep my mind races. I guess i am reaching out to this group for reassurance that this will reduce in time. I feel guilty about being off work, even though they are being really supportive.
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Hello @BronteK
A warm welcome to the forum, thank you for taking time to reach out and for feeling comfortable to do so.
My heart goes out to you, it must be a very uncertain time, and I hear your concerns regarding sleep, or the lack of it.
When first diagnosed it is a very confusing time, despite the various support structures out there. I felt similar to you (I was diagnosed with Chronic lymphocytic leukaemia (CLL) in April this year), and to compound this you mention your due a hysterectomy, so even more things on your mind.
If you haven’t already, please make sure your GP / Medical experts are aware of the way you are feeling and see what support they can offer you.
You may fins the section - Blood cancer: mind and emotions | Blood Cancer UK - useful, but beyond this, if you feel comfortable, you can always speak confidentially with our support services team for information and support on 0808 2080 888.
Please take good care and do feel free to let us know how you get on
Mike.
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