Hi there @Gracekelly, and welcome to the Forum - I’m glad you found us.
Thanks so much for sharing all of this, it sounds like you’ve had a lot to deal with in a short space of time, especially after so many years on watch and wait/active monitoring.
Although my own treatment was for Hodgkin lymphoma rather than Chronic lymphocytic leukaemia (CLL), I did experience significant neutropenia during chemo and had to self-administer G-CSF injections after each cycle to boost neutrophils. I remember how draining that rollercoaster of ‘up and down counts’ can be.
You’re definitely not alone in some of what you describe, and if you scroll to the bottom of this page, you’ll also see a ‘Related Topics’ section, which can suggest other Forum threads you might find useful (though your mileage may vary, as this is an automatedfeature). In the meantime, these threads might be helpful:
• Venetoclax with obinutuzumab for CLL
• I have just started treatment of Venetoclax and Obinutuzumab for CLL
You also mentioned itching, which we know can be SO frustrating. Our Blood Cancer UK page on itching has some clear, practical information that might come in handy.
I hope other Forum members who’ve been through a similar experiences (even if the details differ) will add their thoughts too. And if you’d ever like to talk things through one-to-one, our Support Line is there on 0808 2080 888.
Take care,
Ceri - Blood Cancer UK Support Services