Venetoclax with obinutuzumab for CLL

Oh @Annie78 fingers and toes crossed, look after yourself

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How have you been @Lynne57 ? X

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What a long journey. You are so close to the end. It’s really great to get updates and brilliant that you can share your experiences X

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Had bloods and consultation this week, consultant very happy, haemaglobin of 135 WBC 4.5 not long to go now, roll on April :blush:

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I’ve been ok thank you for asking, part two of the first dose went in smoothly. I have been tired and slightly nauseous on occasion. Have been keeping up my 3L water intake! I have lost some weight so will keep an eye on that.

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That’s really good news @Mickbrit :blush:

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Glad the second part went smoothly. Yep - always good to keep a note of any changes. Gosh, 3L of water, i wouldn’t be able to leave the house! :woman_facepalming: You take care X

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Hi Erica, my sons building work has had a few hiccups but it’s getting there, I’ve told him not to fall out with his builder but to discuss calmly any issues (which seams to be working). I’m feeling much better now I’ve been able to have my hair coloured. My Venetoclax treatment finishes on the 15th April & then I have a chest X-ray & ct scan, like I did before my treatment started. Then I’m going to join the gym & go to the Pilates & yoga lessons & dust down my Pilates machine in the spare bedroom that my sons & his family have not occupied yet lol !

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I am on the same treatment regime as you but maybe a year behind. I haven’t been sick or poorly like you and I am unsure why, we are all different I suppose. I do feel dehydrated as you mention and like you am drinking plenty of water and decaf tea.
One thing I have been getting a lot of are niggling headaches, with the occasional whopper that puts me in bed for a day or two at a time. Let’s hope we can lose our Covid ‘shackles’ soon.
I regularly think of all CEV people that are not seeing light at the end of their tunnels just yet.
Good luck.

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Sadly I found out for sure recently that Venetoclax weakens Tcells too so that’s a double whammy… I’m getting a bit fed up with being at home and not seeing anyone now there seems no end to it

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It does seem to be going on forever doesn’t it. Can you start seeing people outside now that the sun is starting to shine a little bit more?

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Oh @Annie78 everything seems the final straw after isolating so long doesn’t it.
We are all here for you and in the same boat (without a paddle !!)
Be kind to yourself

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