Our colleagues at Lymphoma Action have asked us to share their support meeting details.
Please contact them for more information and to register.
Date: 19/03/2025 at 4pm - 5pm
Rare Lymphomas Support Meeting
At these support meetings, you’ll meet others with a rare lymphoma that might be difficult to classify, not have a clear treatment pathway or be linked to an infection or treatment. It can be difficult to cope with the uncertainty surrounding rare lymphomas and it can be hard to find reliable information about very rare types.
You are welcome to join if you have one the lymphomas listed below.
- T-cell
- Grey zone
- Double-hit and triple-hit
- High-grade B-cell, not otherwise specified (NOS)
- Primary effusion (PEL)
- Post-transplant lymphoproliferative disorder (PTLD)
- Primary central nervous system (CNS)
- Very rare forms of DLBC
If you aren’t sure whether the type you have is very rare, please email us at services.managers@lymphoma-action.org.uk for more information.
Our support meetings provide a safe, confidential place where people affected by lymphoma can talk to each other about their experience, express their thoughts and feelings, gain insight from connecting with others, and get support and information. They last an hour and follow a common structure. The facilitators will listen, seek to understand your experience and help address any questions or worries you have.
Support meetings are hosted on Zoom, but you don’t need a Zoom account or experience of using Zoom. You will need access to an internet-enabled device with functioning microphone, speakers and camera.
To register for the support meeting service, you must be aged 18 or over, resident in the UK, and personally affected by lymphoma.
Please use this link to register: Registration-Support-LymphomaAction"