What to try for PV itchiness

Oh that’s great @SouthJerseyEd, I’m glad your doctor doesn’t see any negatives to you taking the supplement, and I’m especially glad it helps with the itching. You might be surprised by how many comments on here encourage others to take all sorts of clinically unproven stuff! Of course your doctor knows your specific diagnosis, which may not suit others with our own. Worth being more careful now, I’d say.

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Duncan:

I didn’t put this in my first post either because I this site doesn’t like links for some reason? But I also saw it on the National Institutes of Health (NIH) website too.

Ed

“Conclusion

This study adds to the body of evidence supporting a role for β-alanine as an efficient and safe treatment option in patients with aquagenic pruritus. Furthermore, it includes a discussion of the pharmacodynamics of β-alanine and provides an insight into the pathophysiology of aquagenic pruritus.”

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To be honest, ii just gave a polite reply to the person suggesting it. I wa0s prescribed some ta0blets by my oncologist-haematologist to take when the itching is really bad. I would never take anything not discussed or prescribed by the medical people.

Best wishes,

Beryl

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It was a long time ago I was diagnosed with Polycythaemia vera ('PV'), and I can’t quite remember but I suffered intense itching all over, after a shower/bath. It was like a hundred pin pricks, not the sort of itch that needed scratching, it went after about ten minutes. Then when put on Hydrea the itching was reduced by about 50%, became much more bearable.

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Great to hear. Chuffed the meds have worked :+1:t4:

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Yes, I suppose. I never looked at it quite like that. I thought itchiness was just an unfortunate side effect of something much bigger.

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My itchiness is worse when my iron levels are proper depleted,

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