Oh that’s fantastic news, @Ledgell! You’re doing so well. You must be very relieved.
Sorry to hear your poor husband is suffering with a tooth abcess. That sounds painful. Hope he’s better soon. But great your friend could step in to help as your Barts Buddy. Support is so important on these results days.
Well, I hope you celebrate a bit today, but keep warm and cosy in this awful weather. Xx
Oh @Erica, sorry you got soaked! Hope you’re warm and dry at home now, and stay safe in this storm. Has it been/is it bad where you are? I’ve never heard such a roaring wind as the one last night.
And sorry too you have had pre-cancerous skin once again and had to have it removed. You’re not getting much luck on that front. But at least it was caught early, and was so beautifully decorated and moisturised for the doctor (!) 
Sounds like something I would do! I once unknowingly went to the hairdresser with twigs in my hair. I had been gardening, and had no idea I’d taken the garden with me for a wash, trim and blow dry. I was so embarrassed. 
Hope you have a safe and dry day. Xx
Hi All
Great news for you @Ledgell - nice! Enjoy that time snuggled up under your warm throw.
@Erica - I would have done the same as you and kept quiet on he rogue hot chocolate spot. @Fullofbeans - your story made me chuckle 
too. The last time I went to the hairdresser had loads of mud in my hair as had been out on a bike ride on a muddy and wet trail. I had to apologise as she was trying to comb out mud globules 
Thanks also for comments on Halloween tea but they aren’t biscuits. The white ones are bao buns filled with vegetable chow meson. There is spicy cauliflower pieces with a barbecue dip, burger sliders with a pastry ghost top (a little well done!)!and halloumi fries. So nothing sweet at all but this has also made me smile today (and Danae too) so thanks 
Oh, and onion 
rings too 
Oooh very inventive food! Sounds extremely nice - better than biccies. My bad.
So glad I’m not the only one going to the hairdresser like Stig of the Dump, @SarahMum Your bike riding sounds great fun. Actually, after the chemo, when I had about 4 cm of hair growing back, I did go to my hairdresser for a ‘trim’ (it needed evening up)- but had forgotten to tell her I’d had chemo, and that I no longer had long hair. That gave her quite a shock too. Might be something for Danae to keep in mind, because I can see she had beautiful, long, curly hair previously, and that would definitely shock her usual hairdresser, if they didn’t know. But it grows back surprisingly quickly (well, in my case, anyway.)
Hope your roof survived the wind, @SarahMum? It really roared here - the worst I’ve ever heard it.
And hope you and Danae are both relaxing, and both recharging your batteries after all the hospital weeks? And that Danae’s getting stronger. X X
@Ledgell good news medically and also that you are still Covid free.
I prescribe a celebration, but perhaps wait for your husband to feel a bit better, a tooth abscess is absolutely horrible.
I bet you are a happy bunny, so I am for you, be kind to yourselves
@Fullofbeans we have been very lucky here weather wise, but battened down the hatches, and nice and warm and cosy here.
Oh I did laugh and you doing your Worsel Gummidge impression. I am sure all our Hairdressers could tell some tales.
Oh @SarahMum I also laughed at your tale of going to the Hairdressers after a mud bath, I am so glad that you are going cycling again.
I am still thinking about your Halloween food choices, I will stick to my chocolate biccies as the are best for dunking!!!
Yes, batten down the hatches and @Ledgell snuggling under her heated throw sounds rather appealing to me.
Loads of love to you both xxx
Hello lovely peeps
How is everyone doing? All good here. Danae had a bone marrow biopsy last Monday so we will now wait on MRD results.
She says she feels stronger every day. Yesterday we went down to Lusty Glaze (Newquay)to see the Leukaemia Care unicorn 
. One of the owners has Leukaemia and bought one of the unicorns in the charity auction and brought it down to Lusty. It is a restaurant at the bottom of a cliff so who knows how they got it down to the beach lol It was lovely and they do fab hot chocolate. Danae did so well climbing back up the steep cliff steps and she was really happy that she did it.
She has also been out to brunch with a good friend and is meeting another friend for lunch tomorrow. She wore a wig when she went out to brunch and she came to show me before she went. I turned around and promptly burst into tears. She looked so beautiful and I had my Nie Nie back 
Anyway, I hope everyone is doing okay and enjoying a restful weekend. Oh, forgot to say I am returning to work this week. It feels quite scary after 6 months?! It is going to be a phased return so that will help.
Take care and speak soon
The DD xx
A trip to Newquay is in order @SarahMum and Danae on your hot chocolate recommendation.
Yes, I have seen the Unicorns on Facebook aren’t they all unique and stunning.
So glad that they have gone to good stables all over the UK.
Yes, how did the Unicorn clip clop all the way down to Lusty Glaze?
Another of life’s mysteries.
Glad to hear that you are, at last, a girl that lunches, Danae, I find it so much more enjoyable than going out in the evenings especially now that winter is drawing in.
How did it feel going out in your wig Danae?
I had been wondering what your situation was with work @SarahMum, but I did not like to ask.
Has it really been 6 mths.
A phased return is good, it is going to be quite an adjustment for both of you.
Please do let us know what it feels like for both of you.
Yep, speak soon.
Love and hugs to our DD xx
@SarahMum
So pleased everything is going well. I never wore my wig, my hair had never looked that perfect and when my daughter laughed when she saw me in it I never tried it again! (we are the opposite to you two, I was the patient, she was at uni).
Hope the return to work goes well, I expect it will feel like you were never away by the end of the first day!
I don’t know of any unicorns in Scotland, maybe someone will tell me differently.
Sue x
Aw, so pleased to hear you’re both getting out and about, @SarahMum and Danae. A bit of a normal life again. 
I’m staggered that Danae made it up those steep cliff steps, so soon after being discharged. Well done, Danae - quite an achievement!
Must be lovely for Danae to finally go out with friends too. I bet she looked gorgeous in her wig - although she can more than carry off the bald look.
And back to work for you too, @SarahMum? I hope it hasn’t been too difficult. I imagine your mind has been at home with Danae regardless. I hope your colleagues are kind to you, and that you take it slowly.
Great pic of the leukaemia unicorn! Perhaps they brought it in by boat?!? 
So good to hear all is going so well. You both so deserve some normality and fun. Xxx
Hi @Ledgell
How are you keeping now ? Hope you are continuing to make headway and you are enjoying home life again. Hope your husband’s access has cleared too
Best wishes x x
Ah, thank you so much for thinking of me! I’m on day +65 now, trying to appreciate the small encouragements - and frankly, very grateful to even BE here as we approach another Christmas. My husbands tooth abscess has now cleared up, but he is still struggling with some other heath issues (which he never had before I was diagnosed). He has a gastroscopy next week……
Physically I seem to be doing OK, although progress continues to be very very slow. The lack of energy frustrates me - there is so much I would like to do, but can’t. And I’m more anxious now than ever - which has taken me by surprise. So many ‘what ifs’ still. I have my second chimerism this coming Wednesday, so hoping that will show continuing good progress.
Sorry if this all sounds a bit gloomy! It really isn’t. I guess we are all still reeling from having our lives hijacked by Acute myeloid leukaemia (AML) and grappling with the knowledge that the life we had planned isn’t the one we now have!
Sending love to all the lovely people reading this, fellow travellers xx
Hi @Ledgell I did not feel your post was gloomy, we really want to hear honestly how you are feeling and doing.
Don’t forget what you and your body have been through I think it is no wonder that it will take time to build up your energy and that your mind takes time to come to terms with everything.
Yes, I believe my great loss is actually the way I went through life before so sure that it was mapped out in front of me with my son marrying and producing grandchildren etc. etc.
Well 19 yrs later it is his 50th birthday tomorrow and he still is not married and I don’t think I have any grandchildren anywhere.
Actually all any of us have is the here and now which I never thought of before my diagnosis.
My advantage is that I make sure I make the most of every day
As I have said before my 70th birthday was my best birthday ever, me and Colin the Caterpillar cakes.
Just give yourself time and be kind to yourselves.
Love to you all xxx
Hi @Ledgell
So good to hear that you are doing ok.
I am Day+130 and believe me you will be feeling less fatigued as time goes on.
It is frustrating but honestly one day you’ll just think, wow !! I am starting to feel better.
As for anxiety …. I’m not glad to hear you are feeling anxious, but again … Strangely , I have become very anxious since transplant myself , I didn’t even feel as anxious as this all through my journey pre-transplant but for some reason anxiety is always lurking in there now.
It’s good to talk to “ fellow travellers “ ( I like that title )
I hope all goes well with your husbands tests and he’s back feeling better soon.
Look after yourself and good luck with Chimerism.
Best wishes x x
Hi @Erica
I bet you can’t believe that you have a 50 yr old son. Many Happy Returns to him for tomorrow.
Are you getting a Colin the Caterpillar cake for him ?
You’ve got a very positive attitude and you always give great advice to us all.
Happy days x x x
Hi @Fifimac, although he is my son he is not keen on chocolate cake!!!
He requests a cheesecake, last year it was a pinna colada one (a great success), this year it is a cheesecake with biscuit crumbs on the top that sort of glisten. I hope he appreciates I have an hour’s journey to get it and then it is another hour to get home.
I am not perfect and sometimes do not take my own advice ???
Yep, happy days to you too.
Hi @Fifimac and @Ledgell
I too found I coped with treatment and Stem cell transplant but struggle with anxiety since. I’m almost 20 months post transplant and it is still bothering me, less often but it hasn’t gone. I’m sorry I don’t have a solution but have come to the conclusion it is my way of processing what happened. I’m knitting an arran jumper for a friend’s grandson, that has focused my mind on something else recently!
Other than that I am really well, just getting ready to go a long walk as it is actually sunny this morning!
Take care and be kind to yourself xx
Hi All
@Ledgell , your post wasn’t gloomy at all - just honest and telling it like it is. Nothing wrong with that. I love the term of fellow travellers’ too .
So, guess what…? Yesterday we were at the hospital for bloods and Danae’s lead nurse came down the corridor with a big smile 
. Second MRD test back and is negative- she remains in remission. I got very emotional 
Such good news.
We stayed in Plymouth all day as Danae went out for tea with fellow teenage and young people travellers. There were 14 of them - far too many young people fighting cancer. The parents met for coffee and I felt so sad as two of the parent sets know that their child is receiving palliative/end of life treatment. That made me so sad and I haven’t stopped thinking about them all last night and today.
I felt so guilty having the good news about Danae and they are going through this. I can’t imagine how they must feel huh? This journey continues to have the rollercoaster effect.
Sarah xx
Hi @SarahMum
This is just wonderful news!! Huge hugs to Danae from us all!
I appreciate how desperately bitter sweet it must be to meet and connect with parents who are going through incredibly difficult times.
I would imagine it must feel really conflicting knowing you have your own positive milestones to celebrate yet being all too aware of others going through the very opposite.
I hope you are able to go easy on yourself and do some lovely things together this week.
As always we are here for you all, Lauran
