Acute myeloid leukaemia

Hi Everyone :blush:. How are you all doing? I hope everyone is the best you can be in this moment.

Checking in with an update. Danae is doing well. Last biopsy result has come back negative :smiley::tada: Feeling VERY thankful.

Danae has moved in to her new place in Bristol and will start her new job next Monday. How cool is that..? I miss her terribly but am so happy and proud.

We still think of you all often and send love and positive thoughts to you all.

I feel weird and still cannot believe we are where we are today. Life moves in mysterious ways.

Stay strong everyone. Be secure in the moment you are in. Keep a positive idea/thought in your mind and heart. :blush:

I will keep posting and let you all know how working life goes for Danae…

Take care

The DD :blush::two_hearts:xx

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Ohm @SarahMum and Danae that is really good news and a great relief I bet.

So Danae has moved to her new place in Bristol and I bet you have both got so many mixed and conflicting thoughts and emotions.

Please do wish her every happiness and good health in her new venture. @SarahMum I bet you miss her terribly. We are always here for you both.

Yes, life does move in mysterious ways, I often think I would not be where I am today without everything that has happened in my life before.

I expect regular updates on you both.

Really look after and be very kind to yourselves and much love to my Dynamic Duo.xx

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Good morning lovely people :blush:

I hope everyone is doing okay and taking care of yourselves. I am stopping by as today is one year post (Midostaurin) treatment for Danae :blush::two_hearts:

We are super thankful and I love my daughter millions :two_hearts:xx

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Oh @SarahMum and Danae yes, today must be a great day to smile and be happy and also to think how Danae’s life and yours @SarahMum has evolved in that year.

Danae how is your new job going?

@SarahMum how are you doing without you girl that you love millions?

I met my bestie friend today and yes, smiling, being happy, having a moan and laughter certainly does give me a boost.

Take lots of care of yourselves and I often wonder how my DD are doing xx

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Hi lovely @Erica :smiling_face:

Good to hear from you and that you are out and about meeting a friend. The ladies who lunch :stuffed_flatbread::two_hearts:

I still miss my lovely lady loads but she is having the best time living and working in Bristol. She will be home in two weeks as she is trying again for egg collection (fertility treatment) It will be lovely to have her home for a couple of days :blush::two_hearts:

You keep smiling, laughing and having a good ol moan Erica :smiley:

Take good care and catch up soon

The DD :blush::two_hearts:xx

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Hi everyone

I hope you are all looking after yourselves out there. We are good here. Danae headed home for Christmas on Monday - it is sooooooo lovely to have my curly girly home :smiley::house_with_garden:

Today she received the most amazing and special call. Her last bone marrow biopsy result is MRD negative. :tada:. This biopsy marks 2 years post treatment so… no more biopsies. She will move to blood tests every three months and a ECG to monitor her heart (following some heart damage) every year.

I cannot begin to put into words all that I am feeling this evening. After the call we hugged, cried, laughed and did a little dance in the living room. I will post again when I have gathered my thoughts and emotions.

I love my daughter with all my being. I have hated all of this and watching her endure what she has. I can’t quite believe where we are today. I am still scared and don’t want to say things out loud or disturb the ā€˜monster’. But this evening I go to bed soooooo thankful and full of love for my gorgeous daughter and all that have cared for and supported her. That includes all of you special people :blush:

I am going to put down my phone now, my eyes full of tears and my heart full of love.

Good night all

The DD :blush::two_hearts:xx

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@SarahMum so that feels like the Christmas gift I didn’t know I needed! I’m overjoyed to hear this wonderful news and love that it has come before Christmas, but more importantly, when you were together so you could shine brightly as you celebrated. I hope you know how instrumental and essential you have been in this outcome - there is no doubt our loved ones benefit greatly from our care and selflessness and that they are loved without limit. I do appreciate how important treatment is though!

For now, as my love enters a new year hoping to hear good post chemo results, I take the joy and hope you have expressed here with me. Thank you for that and every good wish from me to you, D and your loved ones x

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Oh @SarahMum and Danae, that is brilliant news, Just what I needed, now you can both relax and really enjoy the holiday season together.

You really do have such a very special bond together and I can picture you both doing a ā€˜little’ dance in the living room, ā€˜Strictly’ eat your heart out.

Have a brilliant time both of you and spoil yourselves.

dance

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Thanks so much @judesadventures

Have a peaceful Christmas :christmas_tree: and we hope those results are positive when they arrive

Xx

Thanks @Erica :blush::two_hearts:

Look after yourself and we will catch up soon

Lots of love to an amazing lady

The DD :blush::two_hearts:xx

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Hi everyone

We hope you are doing okay out there :blush:

Today is my gorgeous girl’s 23rd Birthday! :birthday_cake::blush::two_hearts:. We won’t be together but she will be spoiled and treated by her (newish) boyfriend :smiley:

I went to Bristol last weekend for early celebrations and we had a blast!

We are sending you all love and positive thoughts

The DD :blush::two_hearts:xx

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Hello @SarahMum Thank you so much for sharing this beautiful photo! A very happy birthday to Danae. So pleased you were able to celebrate together last weekend. Thinking of you both. Willow xx

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Oh @SarahMum and Danae your post and beautiful photo has made my day

A great big very happy birthday Danae on your 23rd birthday. So glad that you two were able to celebrate it last weekend. I wonder what ā€˜having a blast’ actually means? I honestly feel part of your family.

Sending you both love and hugs our Dynamic Duo. xxxx

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Hello all

How is everyone doing. I hope that you guys are looking after yourselves and your loved ones.

Guess who I had home for Mother’s Day..? My gorgeous Curly Girly! She is home until Wednesday. We are both working from home and it feels so nice to just be together. :two_hearts:

I was spoilt on Mother’s Day with flowers, a beautiful card and a yummy roast!

Danae remains healthy and happy. Look how much her hair has grown! :heart_eyes:

I continue to be very thankful for every moment and I just love watching her live and love her life.

We still talk about all of you lovely lot and we send love and positive thoughts.

Take good care

The DD :blush::two_hearts: xx

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Oh what a lovely photo of the pair of you @SarahMum and Danae. You have made my morning.

Also what a Mothers Day with a yummy roast.

I got a box of dark chocs and one of milk chocs so my son hedged his bet. For me it is also a day of mixed emotions.

Covid times certainly highlighted the opportunities for working from home, and what a bonus it is.

Health and happiness is all we can ask for our children. Curly whirly sure is looking good and yes, hasn’t your hair grown beautifully.

Are they west country pictures behind you both?

Yes, please do keep posting my DD xxxxxxxxxxxxxx

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