I know I shouldnt say this @SarahMum just because you’re fellow Cornish maids - but even bigger love to you both. X
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Hi guys , just checking in … day plus 10
I’m not going to lie , the last 5 days have been quite a journey. I’ve slept as much as possible and that’s been a lot of sleep.
Transplant Day was fine and such a good feeling.
It wasn’t till day plus 5, I started feeling pretty yucky.
The medical team here at Queen Elizabeth University Hospital , Glasgow are amazing and know how to react to and treat anything that pops up.
Everything I’m going through they are expecting it and reassure me constantly.
It’s been some week and I’m having a few good moments today. I did have a shower this morning… WOW !!! I was hoping the bed was in the shower room as I couldn’t get back into it quickly enough , really wiped me out for rest of the day !
However , hopefully things will start to go from strength to strength now.
Much Love 
Fiona x x
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Hello there @Fifimac
Just a little message to say we are thinking of you and also well done for getting a shower, whilst it wiped you out it is so important to keep these routines when you can.
I really hope the next few days are ‘calm’ and that those neutrophils appear soon.
Take good care
Gemma
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Oh @Fifimac how lovely to hear from you and hear how you are doing.
So glad to hear that your medical team are amazing.
I think sleep is the best medicine.
Gosh a shower how wonderful, but quite a feat, you must have been exhausted afterwards…
Isn’t it weird how strange a hospital bed is one minute then the next the most snuggly bed ever.
Much love to you and slow and steady wins the race.
Be ever so kind to yourself and please keep posting
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Great to hear you’re getting on quite well, Fiona. It knocks you for six though, doesn’t it? You did really well to have a shower though - I remember I could barely drag myself to the loo at this stage, let alone a shower - and yes, that long walk back across 4 metres of floor! An absolute killer. Breathless, heart pumping, dizzy, legs about to give up - exhausting. Sleep really is one’s friend at this time.
Hope you’re managing to find something palatable and are able to nibble on a little bit of food? And hope you’re not suffering too much with mucositis.
Will be thinking of you and cheering you on across the ether. The worst of all this is over now for you - it’s all recovery from this last treatment going forwards. You’re getting there!
Lots of love and cheering you on. X
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Hi @Fifimac
So good to hear from you with your update. Good on you for having a shower and it sounds like sleep will be your best friend for a while. This is when your body will repair and gain strength.
I read your update out to Danae and we both send you love and lots of positive thoughts 
Sarah and Danae xx
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Well done!!!
Those first few days are tough but you will get there, slowly, but surely. Listen to your body, and only do what you feel able to do!
I am nearly 10 months post transplant and am back up and running, ( not literally although did do the 5k race for life last Sunday!!).
Take good care, and just be cared for x
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Great to hear from you @Nina and that you are doing well 10 mths post transplant.
Congratulations on doing the 5k Race for Life last Sunday.
Look after yourself and slow and steady wins the race.
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Glad you’re doing well @Nina - and fantastic you did the Race for Life!
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Morning All
Guess what…? Danae is home 
. She has fought the infection and her bone marrow has got back to working with neutrophils of 1.0 so has been allowed to come home for a break. Yesssssss! It is so lovely to have her home.
Back up to Derriford next week for work-up tests etc and we then wait on transplant dates (mid to end of August)
We returned home to a little present that Danae bought for me. Good to see my lovely lady hasn’t lost her sense of humour 
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Oh @SarahMum I am so delighted that Danae has fought off her infection and has a some time at home, it will give you both a very deserved break.
As for your stunning badge, that is absolutely brilliant and probably very well deserved !!
So, so thoughtful (and from someone with a sense of humour) when Danae was feeling so rough too.
I bet you still have it on.
Wear it with pride.
Have fun together.
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Ha ha, both the badge and the news that Danae is home and doing well are brilliant! Congrats, Danae!
You do realise that some HCAs are meant to give you a bed bath every morning, Danae, whether you can wash yourself or not?!? And I think some are trained in other delightful procedures… 
Have a fab time, both of you. This break is sooooooo well deserved. X
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I was just thinking the other day … even if the Scotland Rugby were in my room , I’d really have to knock them out the way to get back into my bed. I’ve never experienced Fatigue by I sure do know what it is know.
I’m trying to up my liquid intake now , I’m hoping to be discharged next Tuesday.
I am certainly starting to feel slightly better … I’ll be back on oral medication as from tonight , this will be a challenge. My appetite is still not normal , sometimes I just feel so squeamish.
I’m so glad that week is over.
How are you keeping ? Is hubby home or away at the moment ? x x x
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Ha ha @Fullofbeans She chuckled when I read this out . Hope you are having a nice weekend?
It is sooooooooo lovely being home with my girl!
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Thanks @Erica
I will wear with pride and we are also all wearing our Blood Cancer Uk heart pins with pride too
Hope your weekend is a good one xx
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Woohoo! Go @Fifimac
This is all sounding super duper. Good for you
Rest up and take each day as it comes.
We look forward to further updates…
Sarah and Danae xx
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Hi @SarahMum and Danae, enjoy being in your own home and there is nothing like your own beds.
Rest up and take each day as it comes as you say and really enjoy yourselves at home.
It goes without saying that we look forward to further updates from the both of you, buddies xxxx
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Oh @Fifimac, things must be exhausting if even the Scottish rugby team would just be another hurdle between you and your bed! I really feel for you. And now you’ve mentioned it, I remember the dread of going back on oral meds after everything by drip - it is SO difficult to get those dozens of huge pills down you when you mouth and stomach are rejecting every thought of solids. I couldn’t face food or tablets at all. I was very lucky though that an HCA went out of their way to get me a few cans of coke (I normally hate fizzy drinks) and I managed some calories this way. And in my last week I managed cornflakes every day. But it’s a very real struggle. There is a silver lining though: hopefully when you’re home your appetite will come roaring back, and you can indulge in whatever you fancy, to make up for the lost calories.
My husband’s at sea at the moment. He’s been assigned a new ‘field’ and is delighted to have a different view after 10 years in one spot. ‘But, but surely all the sea looks the same?’ I said. He gave me a very scathing mariner’s glance. I don’t know whether he’s pulling my leg!
And I’m fine thanks, @Fifimac. I’m about to start a trial for a new monoclonal antibody for covid prevention. If I don’t get the new med, I’ll get Evusheld, so that’s hopefully a win-win! My local hospital is involved in the trial.
Well, keep glugging that warm hospital water if you can, @Fifimac. Everything crossed for Tuesday. You’ve done amazingly well if you get out on Tuesday. The fresh air will never feel quite so good as it does on the day you’re finally discharged. I’ll be willing you home! X X
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I’m having a great weekend thanks, @SarahMum - but I’m sure not as magical and wonderful as your weekend, having your precious girl at home! As a mum myself, I can only begin to imagine what you’ve been through recently. You and Danae have both been truly heroic. And so deserving of some wonderful, ralaxing, chilled out time together as mum and daughter. I hope there are lots of laughs - but don’t forget to take her blood pressure at 4 a.m! (I’m sure it would shoot right up!)
Enjoy every moment. X X
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Hi @Fifimac, hope you’re doing okay- it sounds as though it’s been really tough for you and understandably so. I think I read further up that your team are supportive- do hope you’re getting the support that you need. Have you ever been seen by a dietitian at all? Fingers crossed for you that you can indeed get home next Tuesday as hoped. We are thinking of you.
Best wishes,
Tanya.
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