Hi everone,
My wife has recently had a diagnosis for acute myloid leukaemia. She is due to go on to hospital tomorrow and will start her treatment on Friday. We are both very emotional but trying to be brave about things. I am absolutely terrified about the chemo, how my wife will react to the treatment, what the outcome will be. I’m just very anxious and just needed to put something out there too get it off my chest.
Dear @Mabel2025,
Welcome to our forum although I am sorry for the reasons you needed to come here. It is a safe and supportive space and I hope you will find it helpful.
I am so sorry to hear that your wife has been diagnosed with Acute myeloid leukaemia (AML). It is completely understand that you are both emotional and anxious. It is a very overwhelming and very difficult time for you. May I ask if your wife has been allocated a Clinical Nurse Specialist to support you both? They can help you understand the treatment plan and what to expect in the coming months.
I have enclosed a link here to our information for people when they are newly diagnosed. It has lots of useful information including where to get extra support and looking after your wellbeing Blood Cancer UK Just Diagnosed Also, I have included our information on Acute myeloid leukaemia (AML) Acute Myeloid Leukaemia
If you would like to talk things through with us, at any point, please do not hesitate to call us on 0808 2080 888 to speak to one of our support nurses. We are all here to help and support you.
Please keep posting and let us know how you are both doing.
Take care
Fiona (support services nurse)
Hi @Mabel2025 I am so glad that you have found us, welcome, and your very natural anxiety comes from your post.
Just getting it off your chest is just what we are here for.
@Fiona_BloodCancerUK has given you a brilliant response.
You have both obviously had an enormous shock and in my experience that takes a long while to come to terms with.
I often think it must be so difficult being the spouse because you are so powerless to make things better.
I found when I was first diagnosed I kept on thinking the ‘what if’s’ and worrying about the future.
Now I know this is not easy, but I find actually taking things a day at a time really helps me, it is all I can cope with.
Your wife obviously has you by her side and just be guided by what she says.
I imagine you will have lots of things to keep your home ticking over as well.
The most important thing is that you look after yourself as well as you obviously look after your wife.
Ask for and accept help.
Please do keep posting as I look forward to hearing more about you.
Be very kind and really look after yourselves.
Dear @Mabel2025 I’m so sorry to hear the news about your wife.
My husband was diagnosed in 2023 and is doing very well now. It is a marathon not a sprint, and is tough for both patient and family. How are you doing?
I have found this forum of huge use and support since his diagnosis and hope that you will post if you feel like it!
Dear Toadmum
Thank you so much for your email. I’m so pleased that your husband is doing well. It’s so encouraging to hear that they’re can be a good outcome to what is devastating news.
I am doing OK. Carla finished her first ten days of chemo yesterday. Her immune system is now non existent and is looking at a blood transfusion in the next day or so. I’m lead to believe that this is more or less standard procedure and is a stage she must go through in order to try and move to the next stage, which will hopefully be remission.
I will post again on the forum because I feel like it is somewhere that you can just offload and not feel judged.
Thanks again for your email and all the best to you and your family.