I keep reading lots of posts on here as I find it helps. So I thought I would make a post, i’m not sure why really. My husband was diagnosed with multiple myeloma in 2022 and he had a stem cell transplant that used his own stem cells. Two years on in this April we found out he now has Acute myeloid leukaemia (AML) probably from the chemotherapy treatment for the myeloma, which apparently they can’t see the myeloma in the biopsies now.
He is having treatment his second cycle of treatment as an outpatient, but has not yet gone into remission.
They then want him to have another stem cell transplant, but from a donor.
It’s so scary, we just don’t know what to do for the best.
I just wondered if anyone else had Acute myeloid leukaemia (AML) from chemotherapy in the past, and if there are any success stories, as everything I read talks about poor outcomes.
Thanks to whoever reads this.
I would like to add that he is 57 and I am 49. He is still going to work everyday inbetween hospital appointments and transfusions. He doesn’t want to stop work as he enjoys it, he runs his own construction business, so it will be really difficult to get any financial help. And I know he worries about the finances.
Hi @LorM thank you for having the courage to post, welcome.
I hope others will be able to share their experiences for you.
You and your husband have had a lot going on in the last couple of years, you must be absolutely exhausted emotionally, physically and practically.
I definitely think this whole thing is scary and it must be so scary not knowing what to do for the best.
Perhaps both of you might write down your fears, questions and practicalities for your husbands next appointment.
Personally I think financial worries are also very scary, especially when you are self employed.
I don’t know if you have a Macmillan cancer centre or something similar in your hospital as you they might have financial ideas, also Citizens Advice or similar might help. Has your husband any applicable insurance covers.
Keeping working is a good diversion in my book.
The Blood Cancer UK support line is also there for you on 0808 2080 888.
Really look after and be kind to yourselves and please do keep posting
Just wanted to say hi ~ so sorry that you both have to go through this again but it is great that he is already part way through his treatment. I have seen of people who get Acute myeloid leukaemia (AML) as a secondary form of cancer on some of the different Acute myeloid leukaemia (AML) Facebook groups. I don’t post there but sometimes find them useful for targeted browsing.
Sending lots of hugs and well wishes to you. Keep posting & I have no doubt that plenty of people will be along to support. My husband has had Acute myeloid leukaemia (AML) and is recovering from his transplant so I post often on my own post as a form of outlet for myself.