Hi, I really agree with so much of what you say. I also have CLL and have been on ‘watch and wait’ or self monitoring for 14 yrs. I also work closely with my GP, who is wonderful, I was told it was taking responsibility for my condition. I started charting my blood tests on graph paper, but the more tests I charted meant I ended up sellotaping the gragh paper together until it became like a toilet roll. I know keep them on my lap top. I agree that fatigue is also my main symptom. I do not deal with what personally stresses me well and my fatigue can set in immediately or up to 48hrs later. I don’t do evenings, I am a lady that lunches. I love the idea of your electric bike. @Nickmarks57 has done the same, you might wish to read his posts under Living with and after blood cancer, How I am trying to keep fit. Please do keep posting your fears, thoughts and feelings as I am sure they will help others.
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