Hi @Summertime, good idea about the frozen meals. My hospital didn’t offer any heating up service so that’s really nice to have. Hickman line is soar for a few days but not for too long. I’m feeling on the mend now and going for longer walks which is great. Haven’t really got family outside the home but still shielding until I can get my vaccinations which is about 5/6 months after the transplant 
. Then I’m looking forward to seeing my best friend (who has covid at the moment!!) Glad you are doing well so far 
thinking of you xx
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Hi @ChrisCKW how did you manage Wi-Fi? I have 4g but it’s not strong enough to watch iPlayer/Netflix etc. the man opp me has a Wi-Fi booster but not sure how that works?
xxx
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@Summertime because someone else might take it - the bed if you don’t ? I waited 3 nights for a bed on a ward whilst awaiting an MRI . In the end I came home not having moved from medical assessment unit - admission brought about by vomiting from new chemo drugs . I’m in hospital anyway for stem stem transfer in a fortnight .
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@Mayo57 yes that’s what they said. They wouldn’t be able to hold it until the next day. Hope all goes well for you. Where are you again? Xxx
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Oh @Mayo57 so you are in hospital because of vomiting from new chemo drugs, I hope they can get it sorted for you and let’s hope that the next fortnight goes quickly for you, Please keep posting how you are.
Thinking of you and look after yourself.
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Really hope you start to feel a little better soon x
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I remember it was an anxious time for me. I had to wait 3 weeks for a bed after the date I was given for being admitted. I had to put my life on hold and just wait by the phone until the bed was ready and I only just got a bed the day I did as I was close to being bumped for another week! Hope it all resolves itself and goes well.
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I had my new cells yesterday afternoon. Had a reaction during and after the infusion ( chills/temp/shaking/banging head) but feel better today.
Guess I just wait now for the cells to graft and start multiplying xxx
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Hi @ mayo, sorry to hear that you have had problems with the new chemo drugs, must be horrible for you. I hope that they are getting it under control. Take care of yourself, thinking of you xx
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I’m
Glad you’re feeling a little better today x
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Hi @Summertime sorry to hear about your bad reaction, but glad to hear that you are feeling a bit better today, look after yourself.
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It’s a long and tiresome process @Summertime but you will reach a point where you’ve started to repair and you feel better. Hang in there!
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Hi all, getting through the days with lots of sleeping 
.
Day +3 today and so far so good. Not had any gut problems so far although dr said they can come along a bit later. Not fancying much to eat but trying to get something down me.
Onwards and upwards, think I will be here for another 10/14 days until my levels start building.
Xxx
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Great to get an update and to hear things are going well so far. Your body obviously needs to rest so sleep away! Take care. Sending lots and lots of love X
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Hi @Summertime,
Well done so far! Amazing to have escaped gut problems and I hope that continues.
Does your hospital have Scandi-shakes (protein drinks)? I found they were such a help when I didn’t fancy eating much and they tasted better (IMO) than FortiSips although sometimes those were useful too.
I’ll never forget the first day when a cup of tea tasted lovely again! It will happen in good time. Keep up the good resting. You can do this.
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Hi @Summertime that’s brilliant news hope all keeps stable, your’e doing really well. Get those in, passes the time too! xx
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Hi @Summertime yes, keep sleeping your body has been through a lot and you must need the sleep. Thinking of you loads, look after yourself.
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I am okay thank you. Just finished my cycle 3 of treatment and waiting to go home when my neutrophils go up.
I didn’t have a great time at the end of cycle 2. I was doing okay but ended up having a seizure due to the methotrexate. It was all a bit scary but after scans etc, all is fine. Just shocked me and made me realise how out of control I am. Hate it. So haven’t been reading the posts as much as I used to as just felt a bit lost.
I am at the moment not having a transplant as they said I don’t need one so carrying on with chemotherapy. My sisters are on standby if I do need one though as they are matches, which I am very thankful for.
I do hope things are going okay in hospital with your transplant. I do think about how you’re getting on. I never answered before when you asked but I’m having my treatment at Barts. I know you’re in Cambridge (hope I remembered right) so hope it’s all going well and you’re not missing family too much. So hard being away from them, I know.
Take care xxxx
Just read you’re doing well further up the posts! Brilliant to hear xxxx
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Hi @Northernsmito26 lovely to hear from you. Gosh, that must have been scary having a seizure. I know exactly what you mean when you say you feel out of control. I do too, I have simply given myself over to the drs and nurses and doing what I am told.
I hope your future chemo is not too hard on your body and mind.
I am doing ok, beginning to feel a bit lonely and isolated now but they tell me it could be 2/3 weeks yet before I go home, as I won’t be discharged until my levels have started to rise😫
Take care xxx
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Hi @Coastgirl @Erica @Lyn99
Thanks for your lovely messages support.
The poops have got me today, not feeling too bad atm though.
I tried the scandishakes today @Coastgirl as I just haven’t been able to eat much.
I’m doing lots of napping, phone calls etc but getting a bit bored now 
Might start doing some photo books tomorrow, if I can work out how to do them xxx
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