Gosh @Ashob it really is all systems go for you isn’t it, you must be completely exhausted.
Please up date us as and when you can.
Yes, you must be dreading it, it’s that unknown isn’t it.
Spoil yourselves this weekend and be kind to yourselves
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Best of luck, @Ashob. What a couple of days you’ve had - you poor thing. Hope you get a good rest over the next two days, and a negative on your PCR test. And of course lots of hugs with your family.
Going in for the transplant is so daunting, but so many people have them and get well again - so please take heart from that. In 3 or 6 months time, you could be feeling like your old self again, and with this daunting period very much behind you.
And I hope you know we’ll all be cheering you on from here. X
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Thank you so much…just what I needed to hear xxx
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Be thinking of you. I’m the meantime, enjoy the weekend and the sunshine. I was going to say try and relax but I can imagine there is lots to think about. A lovely reply from @Fullofbeans. Take care x
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Hoping you have a nice relaxing time with your family before your admission. At least with the short notice it has reduced the anticipation time.
All I can suggest, as we are just a few days away from discharge home post transplant, is go with the flow and know that your body has been primed and made ready for this. You have got this!! If you can off load on here and you feel it would be helpful we are here and cheering you on from the sidelines.
Sending love to you and your family from me and mine x
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Good luck @Ashob, you’re ready for this! Take it a day at a time and you will smash it. It seems hard at the time, but at day +109 it seems like a distant memory to me! I will be thinking of you x
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Thanks so much @Suey. Great to hear you are feeling so well. Thanks for posting xxx
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Thanks so much @Debbie36. I really appreciate that xxx delighted to hear its nearly home time for your hubbie.
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Hi all well im here and on day -6 today.
Having chemo 4 times a day for the first 5 days so one day done day 2 today. Then i have 2 rest days, transplant day, then 2 more rest days then 2 more chemo days as i have a mismatched donor.
Its very daunting but im trying my absolute hardest to stay as positive as possible and take it a day at a time.
Hope everyone is keeping well x
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Hi, @Ashob it must be very daunting, I think the unknown is but it sounds as if you are doing brilliantly.
However don’t forget that you can say how it really is for you during the ‘wobble’ times on here or if you would like to speak to someone on the Blood Cancer UK support line.
A day at a time sounds good to me and be kind to yourself
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It’s really great to get an update. As @Erica said, It sounds like you are doing really well. Hope the next couple of days go ok to. Keep us updated when you can. Please take good care of yourself 
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I think just take it one day at a time @Ashob . A transplant is a difficult process at the best of times and you should be kind to yourself and see each phase you get through as an achievement. Give yourself something to look forward to as well, I found that helped with motivation.
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Good luck Ashob, stay positive and know that you have a huge supporting group here. So many people have been through the process; it is tough, but the Stem cell transplant teams have dealt with all of the problems on others so they will be able to look after you. Will be thinking of you x
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Thanks so much everyone for posting. I read them all and they are helping me for sure. Im day -2 today. Have no treatment now till day +3 and +4 when i have chemo again as i have a mis matched donor. That chemo is to be quite difficult so im just trying to stick to my mantra of this will work and one day at a time xxx
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Hi @Ashob yes, keep to those mantras and use us and the Blood cancer support line on 0808 2080 888 to say how it really is for you.
Loads of virtual hugs xxx
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Hiya to everyone,
This is the first time I have written on the forum. I had a donor led transplant on 21st April so I am at my 100 days. I usually live on my own but my relatives have been marvellous - particularly my sister who has moved in with me. About 3 weeks ago I started to get my appetite back and I am now managing tasks round the house that I didn’t think it would be possible. I have had mild Graft versus Host which is being dealt with using steroid cream and upping the cyclosporine. I feel by the end of September I will be managing myself but wonder whether anyone has any tips should I pick up an infection how I will manage? I want my sister to get her life back and she will need to isolate for at least 5 days before she can visit me as I think I won’t get to have any injections to boost my immune system to the new year at the earliest. Whilst I am thrilled I am doing so much better I do look ahead with fear and trepidation about what the future holds. I want to jump 6 - 9 months in the hope I can start to mix more and see friends. Does anyone have any tips about living on one’s own ? Thanks Skye
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Hi @Skye59 a great big welcome to our forum and it sounds as if you are doing rather well.
It is difficult as we are all very special unique beings as to how we react to things and how quickly we recover from things.
I think the answer to your infection question is if you think you have an infection get the right antibiotics for it asap. How you react to it is so individual.
I think it is natural to think ahead with trepidation and the answer to that is who knows, I certainly would not have predicted the last 2 1/3 Covid yrs.
You ask about any tips about living on your own and I have a feeling that you feel that you are going to really miss your sister and I am sure you will, but you say that you have lived on your own before and I believe that many people on this forum do.
Slow and steady wins the race and if you would like to speak to someone the Blood Cancer UK support line is there for you and we are here for you on our forum.
Please let us know how you get on.
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Thank you Erica,
I am very prone to run before I can walk and thinking of the autumn and winter being round the corner and finding myself with lots of time on my hands rather daunting. I am a very sociable person who before the advent of Covid did lots of voluntary work which I hope one day I can get back to once my immune system has kicked in again. The next thing I have to look forward to is a bone marrow biopsy! I will keep in touch.
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One day at a time is definitely the way to go. Sending lots of special wishes your way x
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Hi @Suey I have been thinking about you, how are you doing now?
Look after yourself