We just though we’d share a link below, for those of you may not have seen this yet across social media channels.
Our fantastic Research Comms Manager, Rachel, has a written a blog all about vaccinations and the coronavirus.
Thanks very much - I have just read it through and it’s most informative especially the two vaccines under trial at Oxford and London, now they work and the suitability of them in due course for blood cancer patients. Appreciate the information and research very much
I’ve had FL for 14 years - in remission and doing well. Have been shielding and contributing to the excellent Covid-19 Symptom Study since the start of all this. Have said I’ll join their list for vaccine volunteers because I believe they don’t just want young/healthy people - they need to know how it will work for older people with co-morbidities (like many of us on this forum). And comments on whether this is a good idea, or not?
Thanks
Heather
Hi Heather, welcome to our community forum from a not so young member with co-comorbidities. I agree a study should contain either a random set of people or a spread of all sectors of society. Whether it is a good idea to join the study would be for one of your medical team to advise and I suppose they check it out with the people running the study, please let us know how this materialises. We are here to support you and if you need to talk you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at support@bloodcancer.org.uk. Take care and please keep posting.
Hi @Heather and welcome. I also have follicular lymphoma. 14 years in remission is great. I wondered if you had any advice insights on how you have managed over the last 14 years in terms off your physical and emotional wellbeing. Off course I have a personal interest but am sure it will be of use to others to. I was also wondering if you got some advice from your team as suggested by @Erica and what they said?
