Hi All, any views on the following would be appreciated. I was diagnosed with Chronic lymphocytic leukaemia (CLL) 2018 and been on W&W since.
I saw my Consultant, who I have been seeing privately, on Monday 26th June, who reviewed me, after looking at my Blood counts for May 2023, and which were taken by my GP.
I had been having infections and cold since October 2022. I still have a persistent dry tickly cough which has not abated over ten weeks. I also had my 6th Covid on 25th May with a bad reaction and raised lymph node under the arm I had the jab on. I have also been very fatigued and unable to do my normal exercises.
i had a Chest X Ray and Cat Scan a few weeks ago, the X Rays were clear and the Scan showed lymph node increases indicative of the progression of my Chronic lymphocytic leukaemia (CLL) at my stage.
When he saw me on Monday, he decided to take new bloods, and also checked on my Iron levels which had previously dipped. I have been slightly anemic for some time.
However, when I left him on Monday, the 26th, he said he was happy with me and the Scan results, but still decided to take my Normal Bloods and check on my Iron levels, as the pill he gave for this me was making no difference.
Three days later after telling me he was happy, he called me with the results of the Boods, and explained that my WBC, Haemaglobin, and Platelets were advancing substantially in the wrong direction and that he was referring me back to the NHS Haematologist Team at my local hospital. Of course, I understood, and accepted this at the time.
I was however a little shocked to be told that I now suddenly needed treatment.
He will send the necessary letters, to the necessary people, and thinks that I should be seen in two or three weeks.by the NHS Team, Where a decision, by them, will be made, as to how to proceed.
He also said that the need for treatment was not ‘Immediate’, and that this was what he called a, ‘Slow Burn’ change.
During the three years I have veen seen by him, I have always had my Bloods taken at my GP’s. The May bloods they took, had a cautionary rider attached which indicated that some of the results might be inaccurate, due to the extension of the 24 hour period from when they were taken.
I mentioned this to my Cosultant but he did not seem too bothered about it. Is it coincidence that the May bloods taken by my GP, and which he was happy with. and the June Bloods taken by the private sector, where he was not.
Sorry if I have not articulated this very well, and it is a little complicated, but I would be interested to know if anyone has had a like, or similar experience, or has any views on the matter.
I am still trying to take all this in, and panicking (Just a little) As I don’t know if this is normal, or IF i should I be worried.
Many thanks and all the best to all. Ron