Oh @Willow what a calming beautiful poem, thanks so much, I have a soggy keyboard 'cose the tears are streaming down my face.
Wow. you really be kind to and look after yourself too.
Thanks so much @Sisi I really appreciate it
@Erica @ChrissyD
Taken aback some what at the hospital yesterday evening. I was initially led to believe it was a kidney scan. It actually turned out to be a neck, abdomen, and pelvis scan. The haemotology nurse was going to give me a callback, never happened, tried to get someone who could explain the situation, unfortunately nobody answered the phone. I suppose the scans were carried out to cover all bases, which makes sense. Very quick procedure, the chemical used for contrast gives you a hot flush and then the scan starts. It would have been nice to have had all this explained though. The phrase informed consent comes to mind.
Best wishes to all unclejack.
Hi @Unclejack and all
It really does not sound like best practice to book somebody for a diagnostic test without telling them exactly what it is for! Or even if the request originated from haematology or one of the other departments you have had dealings with lately? Hopefully you will find out âin the fullness of timeâ and also my best hopes that nothing else suspicious is found!
We really are expected to be patient in both meanings of the word, arenât we?!
@Sisi @ChrissyD @Erica .
Hi Chrissy it seems all these well educated people with various degrees etc are lacking in simple common sense! As an aside I have heard nice have asked clinicians not to carry out Vit D3 blood tests unless connected to bone problems.
Seems the NHS is still in the era of childhood rickets! VitD these days is proven to be such a fantastic support to the immune system.
Anyway I wish all of us blood cancer sufferers well. Best wishes unclejack.
Hi @Unclejack @Sisi @ChrissyD @Willow etc.I had my needle biopsy today on my kidney tumour today and home in one piece, well minus the biopsy bits.
Staff lovely and caring and we have had some laughs.
They also made a mean hot chocolate,
Anaesthetic wearing off now.
A month to wait for results now.
Sorry to hear others care has not been as good be kind to yourselves
@Unclejack Glad to hear that your scan went ok but not so good about not being informed! I hope you get some clarification soon. Best wishes to you x
Dear @Erica Thank you for the update. So pleased that youâre back home now. Hopefully with your feet up, with lashings of hot chocolate! Wish I could make you one myselfâŚsending you one now through the ether!
Hello @Erica. Thank you for updating us. Glad you were treated kindly and that bit is over for you. However I know the waiting and uncertainty is not at all easy. Please go gently and take care of yourself.
Willow X
Hello @Erica. So pleased to hear this first step is over for you and that you were well-cared for. Why so long to wait for results? So difficult to put it aside in your head for such a long time? When you watch these medical programmes on telly, the surgeons get results of tumour biopsies pretty immediately whilst still in operating theatre! Guess itâs staffing shortages and long waiting lists?
Still. Spring is in the air. I got all my washing dry today and the daffodils are coming up so enjoy some of that!
@Erica
Hi Erica another hurdle cleared. Fingers crossed for you. I had a letter from haemotology today. Bone marrow biopsy booked for next Wednesday. Seems Iâm following in your footsteps!
Best wishes unclejack.
Dear @Aun,
I am sorry to read how worried you are. We would be unable to answer questions like this but I have sent you a direct message so we can talk in more detail.
Best Wishes,
Heidi J (Support Services Nurse)