Hi @Lyndam glad to hear that your bloods are remaining level.
Sorry to hear about the UTI they really make me feel rubbish and drag me down. When I am feeling like that the last thing I need is to have to ‘jump through hoops’
Be very kind to yourself
Hi @ChrissyD Thats wonderful news about your recent blood tests! Sounds like all the wonderful home grown food is doing you good! @Unclejack Great to hear things are stable for you & also @Lyndam too. Sorry if I’ve missed anyone off, it’s late & I should be in bed! Hello to all the gang here 
It’s been a bit of a crazy few weeks for us. My husband pulled his back in the garden lifting a plant pot a few weeks ago & he’s been suffering a bit, seen physio & it’s slowly improving but it’s affected his confidence I think. Then, can you believe, I hurt my back, putting salt in the dishwasher! 
So we were both hobbling around the house for a while!
My husbands liver investigations are continuing, since Oct / Nov now! His MRI he had 6 weeks ago has shown one of his bile ducts is narrowed ( hence the deranged liver enzymes) so he’s now going to have another procedure, an ERCP with spyglass, sounds very high tech but basically like an endoscopy so they can see inside the bile duct. We havent got a date for it yet but should be in a few weeks. Sounds like he’ll be well looked after as it’s at the Royal Marsden 
Anyhow, as some of you know he’s had sooo many scans & investigations, nothing to do with his Chronic myelomonocytic leukaemia ('Chronic myelomonocytic leukaemia ('CMML')')! Let’s hope things will be a bit clearer soon. Will keep you posted. Lots of love to all 
Oh @Sisi what a pair you are hobbling around the house with your back injuries, I cannot stop picturing it, but seriously you must both have been in such pain.
I hate putting salt in the dishwasher (it is overdue) it is really heavy and a bad angle and I always make such a mess too.
Really look after yourselves and let us know about the spyglass test.
Dear @Erica Thankyou 
I meant to tag you into my message last night. Apologies. And yes bloomin dishwasher ! I always make a mess of it too 
Glad I’m not the only one!! Fortunately my back is almost back to normal & my husbands is improving but slower than he’d like 
I hope all is good with you & you’ve been able to enjoy the lovely weather today? Much love xxx
Oh @Sisi I had a wonderful morning in the gardens of a local very grand building on the river side. There is free entry to their gardens this weekend and I always make the most of this opportunity. You can soon get away from the crowds.
Then I had lunch with a friend. Today I really felt warmth in the sun which was lovely.
So I did my steps today, glad to hear that you are both slowly improving.
@Erica Oh that sounds such a perfect day
The sunshine really helps doesn’t it 
Hi @Sisi
Oh so sorry to hear about all the back trouble chez vous! These things are easily done - dare I say it - with getting older and everything takes a lot longer to get back to normal! Glad to hear you’re getting there and your husband is just behind you on the healing front! 
We avoid the salt issue in the dishwasher by inheriting a water softener in our house but the irony is that my husband has to lug in heavy bags of salt to fill up the water softener! Madness!
Our climate is mad! We sat sunning ourselves on the allotment on Friday but today it was back over there with heavy jumpers and a coat on a windy cold afternoon to do the watering!
Take care both of you. X
@ChrissyD Thanks 
Good idea with the water softener 
Although I daren’t carry heavy bags into the house at the moment!! It was lovely here too yesterday. I had a picnic lunch with a friend in the park Like you say, back to woolly jumpers today Lots of love
Good afternoon everybody,
As I receive some information from you all, may be a good moment to jump in from Spain. When my platelets counts were steadily decreasing around Christmas, we started considering cells transplant. Lucky to have three brothers and sisters, we hoped for a match but no luck, the best are 5/10 so we will start to search the donor banks. At the same time, the results improved/stabilised so it became less urgent.
As everything continued well, I forgot everything gardening until a some cramps in the lower belly made me think of a possible Apendicitis, First time to the Hospital Urgency, no apendicitis but diverticutis, So I got quickly admited for a 5day stay in the Spanish hospital 15 minutes from home. I knew this hospital by day but hadn’t slept in a hospital for the last 40 years.
Things are going well, from serum, I started liquid diet so I can’t complain. The frightning part is that this visit, althought not related to Chronic myelomonocytic leukaemia ('CMML'), could be a first one of a long series. Not a bright future.
Things are better today, just getting some orange juice and coffee, wow Let’s enjoy it.
Take care
Pierre
Hello @Pierre
Good to hear from you though sorry to hear about your diverticulitis diagnosis. I hope that after a while you will be out of hospital and eating “normal” foods again. Having had the challenge of gut issues myself, I do sympathise as it can be embarrassing and painful,
Also hope that a good match for you can be found in case it is decided to go ahead with transplant.
Keep us updated.
@Pierre So sorry to hear you’ve been in hospital with diverticulitis. My husband who has Chronic myelomonocytic leukaemia ('Chronic myelomonocytic leukaemia ('CMML')') was diagnosed with diverticular disease, last year. Luckily he hasn’t had to be admitted to hospital for it 
But did suffer at home for a few weeks before diagnosis.
Glad to hear youre feeling better & brighter today. Very best wishes to you
Hi @Pierre sorry to hear you are in hospital and have yet another health issue. My husband also suffers from diverticula disease, and a few years back was suffering badly with diverticulitis. Very painful when it flares up. Wishing you a speedy recovery.
@Duncan @ChrissyD @Erica @lindham@sisi and all Chronic myelomonocytic leukaemia ('CMML') patients on the forum.
Morning everyone.. Just a update on my recent five week spell in hospital. Firstly I think it may be useful for friends on the forum to know what IV ANTIBIOTICS I WAS PRESCRIBED.. Initially I was administered 10 days of Tazocin then 4 to 5 weeks course -amoxiclav. My haemoglobin fell from normal to 89 requiring a blood transfusion. Also my potassium fell sharply requiring medication. Strangely my platelets rocketed to over 120 then fell very quickly into the 80s still well above the last 4 years figures. They remain at that level. Monocytes rose massively but fell rapidly back to the 427 level. White blood cells are in normal range as are neutrophils. I thought all of you might find this interesting. I also think the NHS app is invaluable especially the patient knows best section were all tests hospital and GP results are logged. Just highlights what effects on blood counts iv antibiotics can have. Strangely the potassium supplements I was prescribed in hospital (a dissolved fizzy tablet) which gave a painful burning sensation on my wounded throat didn’t have much effect but the bananas and various nuts soon brought things to normal after I returned home. My throat wound has fully healed but has had a minor effect on my swallowing sensation. Best wishes to all Unclejack.
Hi @Unclejack
That’s all very interesting. Apparently both those antibiotics can deplete potassium, and not least the awful diarrhoea you had would have had the same effect. You had a really rotten 5 weeks but really glad to hear that all your blood counts are now stabilising, or even slightly improved on the platelets front!
On my Patients Know Best section, I find it frustrating that it does not release results of some tests eg CT scans for about 6 weeks after the test. However, if I go onto my local hospital website and make a request, I can get the results within days! It’s a tortuous process though, requiring me to send ID evidence by photographing driving licence and proof of address every time I make a request! Ridiculously cumbersome. I wish they would install a system like MyChart which Addenbrookes uses and is very responsive and easy to access once registered! To say the NHS is not fully joined up on the IT front would be an understatement! 
Oh @Unclejack and @ChrissyD Very interesting.
@ChrissyD yes, I find the different NHS systems very confusing.
As I was reading your results @Unclejack it reminded me of a sheet of music with the notes going up and down, thanks for your experiences and take lots of care.
@Unclejack @ChrissyD and all. I’m so jealous that you’re able to look at an app in the first place (just kidding, I’m glad you can). Scotland is lagging behind things like that and we currently don’t have that access. It is scheduled to come but starting in one division (dermatology of all things!) in one board so it will be a while yet. Wishing you all well
So sorry to taunt you! I hadn’t realised that Scotland didn’t have the NHS APP and Patients Know Best. That’s a bit shocking as surely it should be nationwide? Do none of the big teaching hospitals have patient online access?
For nosey people like me it’s been a great asset as I can see my blood test /scan results BEFORE the consultation which means I have time to formulate my thoughts and questions? Makes more efficient use of consultation time too.
Let’s hope you soon catch up.
PS Just seen there is an app on its way
Hi @ChrissyD
The reason App isn’t Nationwide across UK as health is devolved to Scottish Government.
As @judesadventures states it’s likely to be a while coming as they will want to make sure it works
I always just ask for my key numbers when I see Consultant either face to face or on the video call system Near Me
Yes, I was diagnosed last September after more than six months of tests to find out why I had been so sick. Now I have been pit in the ‘wait and see’ group and sometimes feel isolated.
Morning all, my OH has given himself an injury and has low back pain, he can’t take ibuprofen or codeine and paracetamol is not cutting the mustard.
Any suggestions?