I only lost my hair after the transplant and not during my chemo. Given my hair is thin anyway most people didn’t notice but the Mucositis was terrible. Fortunately the menu at my transplant hospital was quite extensive and varied and you got extra options as a cancer patient but for many days all I could manage was ice cream and jelly because I was in so much pain. I don’t think I noticed my non-head hair fall out though it did so quite extensively as I was always quite a hairy person and although some hair grew back it didn’t seem to come back as thickly as it used to be.
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Cell transplant and hair loss are not a guarantee; some folks do experience hair loss due to the rigorous treatment process involved. But the good news is that hair usually starts growing back within a few months after the transplant.
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Losing your hair after a stem cell transplant isn’t always a given, but it can happen due to the intensive treatment involved. Personally, I think when it comes to curing the disease, it’s not always a clear-cut answer.
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Hi welcome @SomPorn to our forum.
Personal experiences are so important on our forum
I really look forward to hearing more about you.
Please do keep posting and take lots of care of yourself.
I have to have a stem cell transplant for Myelofibrosis, Im at risk for transforming to Acute myeloid leukaemia (AML) with several abnormalities in bone marrow biopsy, Im terrified at how awful this treatment is… was it worth it and would you do it again if you knew what you know now? Im also very concerned that it will still transform or come back.
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Yes. I can understand @SuZiLipZ why you feel so terrified and concerned, I think that it is very natural
Be kind to yourself and please do keep posting.
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Hi there
I have myeloma which is relapse remit
I have had two stem cell transplants
First was awful and I was adament I would never ever do it again
When it came to my relapse I had an easier time with second line of chemo and my second transplant was easier than the first although it was still a rough time
I can’t have another but if I could I would do it again
Its the intensive chemo before the transplant in my case melphalan that I found intolerable
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Im so sorry you had to go through twice, I can only imagine how awful that must have been but you are so brave to face again
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Sorry for late response but im struggling to learn how to navigate the forum , I’m sorry you had such a bad experience, definitely one of my concerns going in. However the will to live is strong which i’m assuming is why you did the 2nd one. You were very brave to go back in and hopefully it gives you more years to enjoy life
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