Essential Thrombocythemia

Hi does a m y one else suffer with server back pain which flares up until you can hardly walk or be ok but you can still feel where the pain is. I have Essential Thrombocythemia and I really suffer with my back I was wondering if anyone else on here who has this suffers with lower back pain. I have an MRI in a few weeks at Christie’s so hoping I can get some answers it just doesn’t seem to be something that people report as a symptom. I hope everyone is doing well and trying to stay positive it really is hard. Sending love

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Oh @Vickys01 I have another blood cancer but also have scoliosis and osteoporosis so I have had a fair bit of back pain since 2011 so you have my sympathies, you just cannot get away from it
Let’s hope your MRI gives some answers and solutions.
Please let us know how you get on and I find the more I tense up the worse my pain is, really look after yourself

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Hi @Vickys01,

Thank you for sharing what you’ve been going through. I’m so sorry to hear of the pain you’ve been in- it sounds as though it’s been a really tough time for you with it. I very much hope that you manage to get some answers from your scan, but appreciate it must be tough dealing with the pain in the meanwhile. May I ask if you’ve consulted your haematology team and/or GP about the pain? It may be that they can give you some advice on how to manage it.

Take good care of yourself, and you need a bit of support or wish to talk things over please don’t hesitate to call our Support Team on 0808 2080 888.

Best wishes,
Tanya.

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Thank you @Erica really appreciate your support. Xxx

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