Thanks @Jimbo165 I was talked through it but without actually doing it i wasn’t aware of the safety shield on the needle that is meant to go back so the needle goes in fully. No matter how hard i pressed the safety guard didn’t move so i think there may have been a problem with it. There was a dot on the skin where the needle must have pierced the skin and a ring around it where the safety guard rested so i am sure some went in. I have since found one video online in German but it showed exactly what i did so didn’t appear to be anything i did that was wrong. All the English ones are for a syringe rather than the pen. I will try to get some help when i do the 2nd one in 3 weeks as i really don’t want to waste it and get no benefit when my platelets were finally dropping.
Being 60 isn’t so bad i can tell you. In London it means free travel so that is a bonus.
Best Wishes
And thanks @Erica for your kind words. I just get frustrated as i get older when things don’t seem straight forward.
xxx
Oh many happy returns to you @Leigh65! Such a neat liminal age, might be worth forgetting those untidy ones… I actually did forget my age for a whole year once during the pandemic and thought I was a year older in between birthdays, so that’s always an option too
Belated birthday wishes @Jimbo165 - sounds like a very full on day you had, hope the birthday meal allowed you to move on a little after the sad funeral. Are you still planning on doing the Walk of Light?
Hope you get the besremi injection sorted @Chrispy - always worrying when you don’t know if you got the dose or not. How are the side effects- if any?
Good evening @Gillyj, and everyone else, and thank you for your birthday wishes.
The funeral went as well as expected and the meal was very nice too, thank you, at a place called The Pretty Pigs!
I am indeed still planning on doing the Walk of Light, along with Daughters No1 and No4, potentially Grandson No1, possibly with Son-in-Law No3 and various “Granddogs” too, forming quite a menagerie!
As it’s now a week since my first Besremi Injection I think this is as good a time as any for an update. The jab itself felt virtually painless, which is good, but my energy levels, already a cause for concern, seem even more depleted than usual, and work has been a bit tough this week, although the nicer weather has helped. I do, however, feel that as the week progressed I developed more “flu like” symptoms and also the ulcers made an unwanted reappearance, something I was unaware of until I accidentally caught one with my teeth this morning! I’m not sure what I uttered at the time but I think that Google Translate came up with “Ouch, that smarts, you foolish fellow”, or some such literary prose!
As always, take care, stay safe, be kind to yourselves and keep smiling.
Hi @Jimbo165 - that’s great you’ve got a large entourage to push you along the walk!!
How often are you injecting besremi? Is it 3 weekly? I did hear that it is stronger so I suppose tiredness is going to be prominent the first week but then hopefully it will improve the next couple of weeks. Annoying for you about the ulcers though. Can you work it that you inject after the walk rather than just before?
Take care and keep those gnashers away from the ulcers
Hi @Gillyj, I am doing 125mcg jabs at 4 weekly intervals, at the moment, but I am half expecting that to change, either more frequently or a larger dose, after my next planned appointment on the 6th of June.
My “biting incident” most certainly woke me up during my breakfast just after 5:30 this morning, as all of my senses and nerves went into rapid jangly overdrive, so I shall do my best to avoid any further self sabotage incidents, especially of the oral dental variety!
4 weeks is a good interval- I’m keeping everything crossed that your energy levels pick up after a while and in the meantime no more eating yourself- stick to breakfast instead
Good morning early bird @Gillyj, yes indeed, I’m quite chuffed to be on 4 weekly self stabby intervals although, as stated above, I half (or more!) expect that to change when I am back at LRI in June.
I’m glad I am still able to type as talking is a little difficult, and I sound like I’ve been “on the sauce” all night. I haven’t but it is a tempting thought!
I hope that the weather forecast is better for your Walk of Light next week than for Birmingham next Saturday evening.
Hi @Gillyj and @Jimbo165 Internet problems this morning so my previous message was never posted. I just explained that i also had tiredness but as i am on a new medication for the nerve pain in my back that also makes me feel tired so i am not sure which one it is. I have the aches and pains of pegasys too. I don’t have ulcers but i do have skin peeling in my mouth.
I am also on 125 every 3 weeks. My consultant explained that the match to the pegasys dose is unknown so it is a case of see what happens. I was on 90 of pagasys and it is thought that this may be a correct conversion.
all the best for your walks. My back isn’t up to any long walks at the moment. I have previously doen the race for life but that was a few years ago now.
Hi @Chrispy, I’m sorry to hear of your back issues and hope that that one will settle down soon. Yes, the Pegasys aches and pains, and the fatigue, were gruesome at times and, in all honesty, I never really noticed any lessening of them, the fatigue especially so.
It is slightly worrying that we are being used as “experimental models” with regard to the dosage required, along with the Royal “we” can try this treatment!
Thank you, and I’m sure that we will all do well and complete the course distance before it gets too dark.
As always, take care, stay safe, keep smiling and be kind to yourself.
Hi @Chrispy and @Jimbo165 , I was thinking exactly the same about us being the guinea pigs for the dosage! I didn’t realise that they didn’t know how the dosage compares with pegasys.
I do hope your back settles down and that the besremi gets your bloods under control.
Good afternoon @Gillyj, and everyone else too, hope you are well. I am currently in my final preparation mode for this evenings Walk of Light, also known as sitting down with my feet up!
On the energy front I am afraid that I have to report a total lack of energy after a very busy and difficult week of work but I am known to be a determined individual (that isn’t the word that people usually use to describe me; its a word more associated with mules or donkeys!), so I am confident of completing the course.
The weather is looking promising in Birmingham for later on, which is a vast improvement over what had been forecast earlier in the week.
Good Luck for later on to all of my fellow and fellowette Walkers. Take care, stay safe and no getting lost!
Happy Walk Of Light day folks, wish I was there walking too! Hope it’s a fun time @Gillyj, @Jimbo165 and others doing this, what a great thing you’re doing for BCUK
Thank you @Duncan - it was a lovely evening and although we were a fairly small group they were all so supportive and fun to be with. Did get a bit tired- it’s the wrong time of day for me really, I run out of energy by late afternoon! But so amazing to raise funds for Blood Cancer UK.
Hope you enjoyed yours @Jimbo165 and anyone else doing it!
Good evening to all fellow and fellowette walkers, I hope that you all had a wonderful time on your variously located walks. Goodness knows what was going on in Birmingham this evening but the traffic was horrendous: it took me and Daughter No4 nearly two hours to complete the 22 mile drive to Cannon Hill Park for our Walk To Light.
The walk itself was good, and very well supported, with many hundreds of Walkers taking part in several organised waves, as well as some “free-lancers” who set off in between the waves. I suppose that these people were “ripples”!
Daughter No4 (with Poppy the Spaniel!) and I completed the 5K walk, whilst Daughter No1 and Grandson No1 completed the 2.5K walk. We all managed to finish just before the rain started!
I’m so glad that I took part and hope to be able to do so again in the future.
Between us, Team Martin have raised over £1000, a figure of which I am quite chuffed about!
Well it has been a long day, to be followed by a shorter night so I shall wish you all a good nights sleep and, where appropriate, a Happy Mothering Sunday for tomorrow.
Take care, stay safe, be kind to yourself and keep on smiling.
Wow, @Jimbo165 and daughters, grandson and Poppy and everyone who did the Birmingham Walk of Light a great big congratulations.
I did mine earlier in the day because of health and injuries and it was a poignant time of reflection for me, but I talked and spread the word to everyone along the towpath.
I love the event.
Wow, what amount you made @Jimbo165, you should be very chuffed
Well done @Jimbo165 that’s brilliant! I heard about the traffic issues on FB yesterday- what a nightmare!
I also raised over £1k so am very pleased. My thighs are aching today- about to have a Mother’s Day massage with my daughter at a nice spa- I hope they go gently on my legs!!
Good afternoon dear @Erica and everyone else, thank you for your kind words, I hope that you survived your “ordeal by foot” without any injuries or worsening of health. You would think that a walk in Birmingham would have involved a canal towpath with us having more canals than Venice, but I suspect that the organisers couldn’t arrange for enough Lifeguards to be on duty!
Good afternoon @Gillyj, I hope that your spa session massage has gone well and that you are ready for another walk now!
I wish I had known about the traffic issue on Facebook before setting off as I would have happily traded a few extra miles of driving for the additional 45 minutes of city centre mayhem!
Still, all good here and about to head off to the opticians now that my domestic chores are all done.
Take care all, stay safe and Well Done to all Walkers and their supporters.
and in the meantime no more eating yourself- stick to breakfast instead 
