Father with dementia, diagnosed with AML

Hi Everyone, so my father was officially diagnosed with Acute myeloid leukaemia (AML) on 31st August. Unfortunately he also has dementia and as a result the consultants have agreed that he wouldnt react well to chemo and the Acute myeloid leukaemia (AML) will be left untreated. So its a case of just managing my dads symptoms.
Life is tough at the moment because of paranoia brought on by the dementia. However, my dad who is 72 is really physically fit and you wouldnt know he had Leukemia. He has no signs or symptoms. I suppose im here to manage my expectations for what to expect in the near future. We are approaching 3 months since diagnosis, and although my dad has no visible signs of the illness I know this could change quite quickly. Does anyone have similar experience of Acute myeloid leukaemia (AML) being left to run its course? And what the typical life expectancy looks like. :frowning:

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Dear @Jrowan23
Thank you so much for posting and welcome to the forum.
I am so very sorry to hear that your Father has Acute myeloid leukaemia (AML) alongside his diagnosis of dementia. It must be so upsetting to see this happening with very little control.
May I ask whether your Father is having regular blood tests, transfusions and medical reviews from the Haematology team? I would expect this to be happening so that his blood counts can be supported if needed? Does your Father have a Clinical Nurse Specialist that you can call for support and to escalate any symptoms?
It is good to hear that there are no obvious signs of the Acute myeloid leukaemia (AML) at this point in time. As you mentioned, this type of leukaemia can progress rapidly but you do tend to get some warning around this within the blood count evaluation? Have you been able to ask the Haematology Consultants about time scales? Whilst the doctors can not be totally accurate regarding life expectancy they can relay their thoughts taking into account your Father’s blood counts, the genetics of the Acute myeloid leukaemia (AML) and his general health.
I am sorry that I cannot be more precise for you. If you would like to talk to us we would be very happy to support you: Blood cancer information and support by phone and email | Blood Cancer UK
Kind regards
Gemma

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Oh @Jrowan23 I am so glad that you have found us.
@GemmaBloodCancerUK has given you a response I cannot better.
It must be such a very difficult time for you and as you say tough.
We are all very unique, special people with our own complex medical histories so only our medical teams can really answer medical questions.
Perhaps just enjoy yourselves and, I know this is so difficult, try and keep it in the day.
I find our forum is the one place where I can say how it really is for me, perhaps it might help you too and also don’t forget the Blood Cancer UK support line.
Be kind to yourself and please do keep posting

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Hi @Jrowan23 and welcome to the forum.
I’m really glad you’ve found us and am sure you will find the forum a great support.
I can only imagine how hard things must be at the moment and the worry this must cause you and your family.
Please keep us updated on how you and your dad are doing and keeping posting. We are all here for you :blush:

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