Guide to getting started

Hello, and welcome to the Blood Cancer UK Community Forum!

We hope you enjoy using the forum, and find it easy to use and navigate – but in case of any difficulties, we’ve put together a user guide that we hope addresses any questions. If there is something you feel would be beneficial to include here, please let Blood Cancer UK Staff know!

Download the guide here: Guide to getting started June 2020.pdf (1.2 MB)

Hi all my husband has cll, myself and 2 boys have been shielding with him, if we have things delivered and I clean them down with disinfectant are they safe to be in the house.

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Hi Gem, I also have CLL and I am in isolation and my husband is in self isolation. I actually got a home delivery today as well. Welcome to our forum and we are here to support each other through these anxious times. The wonderful Bloodwise support is also there for us and their details are above. How is it for you all being confined together as this is where you can share your innermost thoughts, feelings and practicalities. Stay safe.

Hi @Gem79 it’s totally understandable that you have questions around this! How are you all doing at the moment?
It’s fine to get home deliveries, as long as you’re following stringent food and personal hygiene (there’s some more information, here -
https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19#handwashing-and-respiratory-hygiene

Take care, Alice

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3 posts were merged into an existing topic: Diagnosed with CLL in March

Hello, and welcome to the Blood Cancer UK Community Forum!

We hope you enjoy using the forum, and find it easy to use and navigate – but in case of any difficulties, we’ve put together a user guide that we hope addresses any questions. If there is something you feel would be beneficial to include here, please let Blood Cancer UK Staff know!

Download the guide here: Guide to getting started June 2020.pdf (1.2 MB)

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How do I post I dont understand. I have a query about teeth. I need two implants but have cll. Is it safe to have this procedure done.

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Hello @pharaoh. Welcome to this forum. I am not medically trained so can’t advise you regarding the dental implants. Sorry about that. However, I wonder if you have a haematology clinical nurse specialist (CNS) who could help you? In situations like this I would always take advice from the specialists before undertaking any treatment. Hope this helps. I have a different blood cancer to you but have always found the CNS a good place to start when I am unsure. Take care and let us know how you get on. Warm wishes. Willow

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Hi @pharaoh, a great big welcome to our community forum, it seems to me that you have posted rather well and I hope the guide above helps you.
@Willow, has given you good advice.
I also have CLL. We are all individual, with different medical histories, but in 2006 I had multiple extractions due to frequent infections and I was told I should not have implants because to the invasiveness of the procedure and likelihood of continued infections.
When I had my extractions my haematologist, GP and specialist dentist all worked together to ensure I had antibiotics before, during and after the procedure. A really good example of professionals working together. I had to go to a private dentist.
It meant that I have dentures, but I have not had any dental procedures since that time.
I have annual check ups and because I keep my dental hygiene well I don’t have to see the hygienist.
I was due to have my annual check up in July, which I cancelled due to shielding, the next day I lost part of a tooth while eating a piece of brie cheese, luckily it doesn’t hurt !!
You can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at support@bloodcancer.org.uk if you would like to talk to someone.
Please let us know how you get on.

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