That’s interesting that so many consultants have said similar things to you @Happy2019 about your diagnosis not being like cancer. My first haematologist told me Polycythaemia vera (PV) was not cancer when he diagnosed me with it and so I felt really confused as I’d already read research about what having the JAK2 gene mutation could mean, as in I was most likely to have Polycythaemia vera (PV). He also told me that the hydroxyurea he prescribed me wasn’t chemotherapy, at which point I stopped trusting his supposed clinical expertise.
I’m based outside the UK so my care is not quite so relevant to your question, but I have a close relative in Kent diagnosed with Essential thrombocythemia (ET) who has also been given confusing information about their blood cancer from their specialists. My dad in south Wales also got the run around by specialists minimising his concerns when he got tested (thankfully he’s negative for JAK2).
This recent thread from a new forum member also relates to whether Myeloproliferative neoplasms (MPN) are considered blood cancers and Nurse @GemmaBloodCancerUK kindly shared some great information: Not technically newly diagnosed but confused about definitions
I’m all for doctors gently helping me get my head around difficult prognoses etc but when they’re wrong and worse yet giving outmoded healthcare then it does make me wonder why so many aren’t keeping up with advancements in their field of expertise!