Not technically newly diagnosed but confused about definitions

Hi there everyone, I’m not necessarily newly diagnosed but new to the website. I’m 43 and have Essential thrombocythemia (ET), the things is when I was diagnosed my consultant explicitly told me that it wasn’t cancer, so I accepted that but was al ays confused as to why I was having my bloods taken at the beatson (very well known cancer hospital in Glasgow) it always made me feel so bad because all the wonderful people there going through treatment would discuss their journey and then ask me who had nothing to say. Anyways was anyone told it wasn’t cancer? Thank you

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Hi @Cheryl82 A great big welcome to our support forum.
Firstly I will copy your post to the Blood Cancer UK nurses for you @BloodCancerUK_Nurses and I hope others on here will share their experiences.
I have Chronic lymphocytic leukaemia (CLL) and was diagnosed 21 yrs ago and the words blood cancer were not mentioned til many years later.
I also have osteoporosis for which I am under the rheumatology department and that required me to have a 6 monthly infusion drip till recently and that was also in the cancer unit at my hospital in the haematology day unit with all the haematology department patients and staff. I know require an injection every 6 mths, and you guessed it, I am still in the haematology day unit it is home from home???
Be kind and look after yourself and I look forward to hearing more about you.

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