Hi @dmquinlan,
My goodness i am devastated to read that after the brilliant high of your incredible challenge you have succumbed to covid. However it does sound like you have had speedy input & care and i hope your symptoms begin to subside in the next few days.
Do let us know if there is anything we can do to support you and keep us updated on how you are feeling.
Rest up and take care, Lauran
Oh, @dmquinlan that really is bad luck getting Covid, but so glad that you got your Paxlovid.
From what I have heard Covid can really take it’s toll and perhaps means that it will take a while for you to get back to the fitness that you must have been for the Ride London.
Really be kind and take lots of care of yourself
Hi all,
Had consultation today with haematology - declared “clinically normal”, so nothing to worry about - next check-up in 3 months.
David
Great news @dmquinlan, I think a sigh of relief and a celebration is in order.
Take lots of care
Morning all - hope all doing well. I had my 3 month check up yesterday - all good - blood parameters within normal ranges - next check up in 3 months.
Brilliant news @dmquinlan and great to hear from you.
Another celebration is in order I predict, look after yourself
Blog post - wrapping up the year! Hard to believe yesterday (Dec 1) was my first cycle of chemo.
Hope all doing well! Thanks all for words of support and encouragement!
Really enjoyed reading the blog. Best wishes to you and Helen and for your 20 yrs of marriage! We’re 20 next year and i too have earned my ‘in sickness’ badge. Though id rather he wasn’t ill, i, like Helen i am sure, do it out of love and hope. Cheers
Thanks so much @dmquinlan, gosh what a year.
You have been such a part of our forum over that time.
Loads of good wishes to you and yours and please do keep posting.
Hi all,
Consultation today with haematologist - doing excellent - he had nothing to report. Next check up in 6 months. Continuing on antivirals daily.
Hope all doing well!
Thanks all!
David
Hi @dmquinlan great news, thanks so much for updating us.
What have you been up to?
Take lots of care
What have I been up to… gee… Well, last update I think was in November, so busy December with concerts (with Hitchin Band) etc - and I did pick up “that cough” which meant I was a bit poorly for a bit - even making a 111 appointment - but Dr couldn’t really do anything.
Also, got first dose of Shingles Vax late Nov I think - which knocked me out for a few days - was meant to have the 2nd dose Christmas week, but was too poorly to receive so postponed (had it this Monday, which has knocked me out a bit Mon-Wed this week).
I guess the good stuff now! Last January when in the middle of chemo treatments and feeling poorly, MrsQ and I decided we would treat ourselves to a sun holiday the next January - so this year, we went to Dominican Republic for 12 days or so of sun. Was great to switch off from things and get some chill time on the beach - I won’t go on about it…
I’m back running / cycling also - haven’t entered the Ride London 100 this year, I think I’ll do a half marathon fundraiser for Blood Cancer UK this year instead. I’m conscious of hitting the same people every year for sponsorship - so changing it up a bit.
Other than being back busy at work, and tackling the DIY jobs around the house that were postponed from last year (a very long list!!!) just getting on with things.
Oh thanks for the updates @dmquinlan
Your concerts must have been brilliant, especially near the festive season.
That ‘non Covid’ cough is nasty isn’t it, i contracted it during and after the festive season
I also had the Shingrix vaccine this time last year luckily with no side effects.
Oh, a holiday in the Dominican Republic sounds amazing.
I am glad that you are back running/cycling again and also that you are fundraising again.
You have raised a vitally important issue and I think I will start a thread on it,
How to keep fundraising for Blood Cancer UK and find sponsorship…
Look after yourself and look out for my thread
Hi there my husband has been diagnosed with hairy cell leukemia in October 2023.he also had cladribine 5 injections in his tummy.he is now getting a bit breathless and took antibiotics and steroids. Doctor did chesr xray and came back clear.he has asthma but i don’t know why he is getting breathless after all the meds.did yoh experience breathless ness?
Hi @Levante I hope that someone can help you.
But perhaps write down all the questions you and your husband want to ask so he is organised at his next appointment.
Please do let us know how you get on.
Look after yourself and please do keep posting.
Hi @Levante
Sorry to hear about your husband. Everyone’s experience is slightly different as we are all diagnosed at different stages in the disease - depending on when it is caught. My first episode, I was already quite ill (neutropenic, enlarged spleen, high temp) when I had my first consultation. My 5 days of cladribine was halted on day 4, when I had high temp and needed to be admitted to hospital for antibiotics & blood transfusions. I completed cladribine, then was out for a week before another hospital stay, with infections / pneumonia. I had chest x-rays at this time too.
After this cleared up, I got back to near normal over the next few months. My second episode (was treated last year) - was caught very early, and I was more ill from the treatment than the disease that time.
I didn’t experience shortness of breath, but many factors could influence that, I run, cycle do yoga and am a trumpet player, so breathing is something I’m a bit more conscious of if that makes sense.
Are you dealing with GP or the team who treated your husband? If I have any issues, I go back to the haematology team first.
Hope this helps. Hairy cell leukaemia (HCL) is quite rare, but there is a very active community here on facebook.
regards,
David
Hello! it’s been a few months since my last update! Happy to say that my consultant was very happy yesterday - all results in normal/expected ranges.
Next check up in 6 months.
Hope all doing ok!
Great to hear from you again @dmquinlan it’s been too long and so pleased that you have a very happy consultant. I expect it has given you a boost as well and cause for a celebration.
Look after yourself and please do keep posting