Bless your heart @Glennie - keep a symptom log.
Bone pain from Myeloma is very hard to describe until you’ve had it (accompanied with mri/ct diagnosis) you are previously only likely to have had muscular or maybe disc related pains and it’s very easy to assume (pre-diagnosis) it’s that, even though it doesn’t feel right. The other thing I noticed was skeletal weakness, in that I couldn’t lift heavy things that I previously could without feeling like something was going to break. This turned out to be because of multiple lesions in my pelvis, spine and ribs, it was very good that I listened to my body as often the first sign for people is fractures and thankfully, although my lesions were large 5cm, no fractures had been caused.
This condition will give you a really good insight into your own body, you’ll develop distinctions between muscular and bone, until then every pain, weakness and anything that ‘just doesn’t feel right’ should get taken to the doctor.
There is a trial for smouldering myeloma for high risk, details and what to do if you’ve not been approached for it are at the bottom of the article:
👥 MODIFY Trial (For Smouldering Myeloma) Peer Support – Connect with Others
Stay connected and make sure you are looking after yourself. Doing the things that bring you joy will help keep the worries at bay xx