Connect with Others: Share Your Thoughts, Experiences & Questions About the MODIFY Trial
This is a peer support space for anyone thinking about or currently taking part in the MODIFY trial for Smouldering Myeloma. Whether you’ve been directed here via a QR code or found the forum by chance, you’re welcome to join the conversation.
What is the MODIFY trial?
The study will test a new combination of 3 drugs: Isatuximab (Isa), Iberdomide (Iber) and Dexamethasone (Dex), in patients who have intermediate or high-risk (more about risk status here (page 9)) smouldering myeloma. Smouldering myeloma is an early form of myeloma which may progress to active multiple myeloma, but at a slow rate. Patients with smouldering myeloma do not usually receive any treatment but will have regular check-ups and observation. Some patients have a diagnosis of smouldering myeloma, which has a higher risk of progressing to active myeloma.
The study will test if the combination of drugs is effective at preventing or delaying the disease progressing into active multiple myeloma. The study will also test if the combination is tolerated and accepted by patients. (Source)
Why peer support?
Hearing from others who are considering or already involved in the trial can be reassuring and helpful. Feel free to:
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Ask questions – if you’re considering the trial, others may have insights to share.
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Share your experiences – if you’re taking part, your perspective could help someone else.
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Connect with others – support each other, whether you’re exploring or participating.
New to the Blood Cancer UK forum?
To get involved, simply click the Join the Online Community Forum button at the top of the page.
Looking for extra support?
This forum is moderated by our wonderful forum support volunteers and our nursing team at Blood Cancer UK, but if you’d like more direct help, you can contact:
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Clinical Trial Support Service – for trial-related support.
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Blood Cancer UK Support Service – for more general support.
Want to learn more about the MODIFY trial?
You can visit the trial page for further information.
If your medical team hasn’t approached you, and you’re interested in finding out whether you might be eligible, feel free to contact our Clinical Trial Support Service. Our team of nurses will be happy to help. Please note that a medical referral must be completed by your own clinician to take part.